I am back from NPYM

I have just returned from North Pacific Yearly Meeting of the Religious Society of Friends. Non-programmed Quakers from all over the Pacific Northwest gathered at the OSU campus in Corvallis, Oregon. Unfortunately, I have no news. I spent the time as a teacher with the children’s program with grades 3-5.

(http://www.npym.org/)

My time spent with the rest of thegroup was;imited to mealtimes, for the most part.

I did attend the community night program on Saturday night. The only thing I have to report from that is that Quakers have a sense of humor. This contradicts conventional wisdom. Many are also very talented musically.

The other item of interest is the Epistle written by the grade 3-5 children’s program. This was read and added added to the minutes of the Plenary Session on Sunday and will be distributed to thousands of quakers throughout the world. It went like this:

To the North Pacific Yearly Meeting:

We the members of the grade 3-5 children’s program explored the query of how to answer that of God in everyone through the following activities:

Silence

Frisbee Golf

Worship Discussion,

Quaker Musical Chairs

Story telling

Ultimate Frisbee

Sidewalk Art

Making medicine pouches

Made up Language

Sleep

Eating

Playing with bugs

a Helicopter

Everybody’s It

(I’m sure I’m missing some)

In Peace, The Grade 3-5 Friends.

Now some pictures I found interesting:

Click for larger

Leave a comment

Filed under animated gif, animation, comedy relief, personal story, silly

Kabir, as translated by Rabindranath Tagore

Kabir: 1398-1518


Notes from other sources-

Kabir ranks among the world’s greatest poets. In India, he is perhaps the most quoted author, with the exception of Tulsidas. Kabir has criticized perhaps all existing sects in India, still he is mentioned with respect by even orthodox authors. Vaishnav author Nabhadas in his Bhakta-Mal (1585) writes:

hindU turuk pramAn ramainI sabadI sAkhI
pachchhapat nahiN bachan sabahiN ke hit kI bhAkhI

[His “ramaini” “shabda” “sakhi” (sections of his “Bijak”) are accepted by Hindus and Turks alike. He spoke without discrimination for the good of all]

He lived perhaps during 1398-1448. He is thought to have lived longer than 100 years. He had enormous influence on Indian philosophy and on Hindi poetry.

His birth and death are surrounded by legends. He grew up in a Muslim weaver family, but some say he was really son of a Brahmin widow who was adopted by a childless couple. When he died, his Hindu and Muslim followers started fighting about the last rites. The legend is that when they lifted the cloth covering his body, they found flowers instead. The Muslim followers buried their half and the Hindu cremated thier half. In Maghar, his tomb and samadhi still stand side by side.

Here I quote some of his verses from his “Bijak”, from the section called “sakhi”. My translation follows the Gurumukh TIkA by Puran Sahib done perhas a century ago. He was associated with the Kabirpanthi center at Burhanpur. Kabir’s writings can be hard to translate, not only because the language is old, but Kabir’s expressions are different from what we are used to seeing.

The verses below use the term “hira” (diamond). It should be noted that during the time of Kabir, diamonds were very rare. At that time, diamonds were found only in India and nowhere else.

Bijak/Sakhi 168:

hIrA soi srAhiye
sahai ghanan kI choT

kapaT kurangI mAnavA
parakhat nikrA khot

Admire the diamond that can bear the hits of a hammer. Many deceptive preachers, when critically examined, turn out to be false.

[Here diamond is siddhanta (the basic principles or doctrine).An experienced diamond cutter can hit the diamond using a chisel so that the chips will break off as expected. A diamond because if its crystalline structure tends to break off at specific angles. Similarly the true doctrine would come out shining when it is critically examined].

Bijak/Sakhi 170:

hIrA tahaN na kholiye
jahaN kunjroN kI hAT
sahajai gaNthI bANdhike
lagiye apni bAT

Don’t open your diamonds in a vegetable market. Tie them in bundle and keep them in your heart, and go your own way.

[Don’t discuss gyan (knowledge) with those who can not understand it].

Bijak/Sakhi 171:

hIrA parA bajAr maiN
rahA chhAr lapaTAy
ketihe murakh pachi mUye
koi pArakhi liyA uThAy

A diamond was laying in the street covered with dirt. Many fools passed by.

Someone who knew diamonds picked it up.

[Those who understand gyan-siddhanta (true knowledge/principles), pause to acquire it].

 

Do not go to the garden of flowers!
O friend! go not there;
In your body is the garden of flowers.
Take your seat on the thousand petals of the
lotus, and there gaze on the infinite beauty.

koi prem ki peng jhulaao re

Hang up the swing of love today!
Hang the body and the mind between the
arms of the beloved, in the ecstasy of love’s joy:
Bring the tearful streams of the rainy clouds
to your eyes, and cover your heart with
the shadow of darkness:
Bring your face nearer to his ear, and speak
of the deepest longings of your heart.

Kabir says: `Listen to me brother! bring the
vision of the Beloved in your heart.’

The following poems include some repeats from different translators:

Looking at the grinding stones,
Kabir laments
In the duel of wheels,
nothing stays intact.

Where do you search me?
I am with you
Not in pilgrimage, nor in icons
Neither in solitudes
Not in temples, nor in mosques
Neither in Kaba nor in Kailash
I am with you o man

I am with you
Not in prayers, nor in meditation
Neither in fasting
Not in yogic exercises
Neither in renunciation

Neither in the vital force nor in the body
Not even in the ethereal space
Neither in the womb of Nature
Not in the breath of the breath

Seek earnestly and discover
In but a moment of search
Says Kabir, Listen with care
Where your faith is, I am there.

O servant, where dost thou seek Me?

Lo!I am beside thee.

I am neither in temple nor in mosque:

I am neither in Kaaba nor in Kailash:

Neither am I in rites and ceremonies,

nor in Yoga and renunciation.

If thou art a true seeker, thou shalt at once see Me:

thou shalt meet Me in a moment of time.

Kabir says, “O Sadhu! God is the breath of all breath.”

*

It is needless to ask of a saint the caste to which he belongs;

For the priest, the warrior.the tradesman,

and all the thirty-six castes, alike are seeking for God.

It is but folly to ask what the caste of a saint may be;

The barber has sought God, the washerwoman, and the carpenter–

Even Raidas was a seeker after God.

The Rishi Swapacha was a tanner by caste.

Hindus and Moslems alike have achieved that End,

where remains no mark of distinction.

O friend!hope for Him whilst you live, know whilst you live,

understand whilst you live: for in life deliverance abides.

If your bonds be not broken whilst living, what hope of

deliverance in death?

It is but an empty dream, that the soul shall have union with Him

because it has passed from the body:

If He is found now, He is found then,

If not, we do but go to dwell in the City of Death.

If you have union now, you shall have it hereafter.

Bathe in the truth, know the true Guru, have faith in the trueName!

Kabir says: “It is the Spirit of the quest which helps;

I am the slave of this Spirit of the quest.”

Do not go to the garden of flowers!

O Friend! go not there;

In your body is the garden of flowers.

Take your seat on the thousand petals of the lotus,

and there gaze on the Infinite Beauty.

Tell me, Brother, how can I renounce Maya?

When I gave up the tying of ribbons, still I tied my garment about me:

When I gave up tying my garment, still I covered my body in its folds.

So, when I give up passion, I see that anger remains;

And when I renounce anger, greed is with me still;

And when greed is vanquished, pride and vainglory remain;

When the mind is detached and casts Maya away,

still it clings to the letter.

Kabir says, “Listen to me, dear Sadhu! the true path  is rarely found.”

The moon shines in my body, but my blind eyes cannot see it:

The moon is within me, and so is the sun.

The unstruck drum of Eternity is sounded within me;

but my deaf ears cannot hear it.

So long as man clamors for the [?] and the [?],

his works are as naught:

When all love of the [?] is dead, then

the work of the Lord is done.

For work has no other aim than the getting of knowledge:

When that comes, then work is put away.

The flower blooms for the fruit: when the fruit comes,

the flower withers.

The musk is in the deer, but it seeks it not within itself:

it wanders in quest of grass.

When He Himself reveals Himself,

Brahma brings into manifestation

That which can never be seen.

As the seed is in the plant, as the shade is in the tree,

as the void is in the sky, as infinite forms are in the void–

So from beyond the Infinite, the Infinite comes;

and from theInfinite the finite extends.

The creature is in Brahma, and Brahma is in the creature:

they are ever distinct, yet ever united.

He Himself is the tree, the seed, and the germ.

He Himself is the flower, the fruit, and the shade.

He Himself is the sun, the light, and the lighted.

He Himself is Brahma, creature, and Maya.

He Himself is the manifold form, the infinite space;

He is the breath, the word, and the meaning.

He Himself is the limit and the limitless:

and beyond both the limited and the limitless is He,

the Pure Being.

He is the Immanent Mind in Brahma and in the creature.

The Supreme Soul is seen within the soul,

The Point is seen within the Supreme Soul,

And within the Point, the reflection is seen again.

Kabir is blest because he has this supreme vision!

Within this earthen vessel are bowers and groves, and within it is the Creator: Within this vessel are the seven oceans and the unnumbered stars. The touchstone and the jewel-appraiser are within; And within this vessel the Eternal soundeth, and the spring wells up. Kabir says: “Listen to me, my Friend! My beloved Lord is within.” O How may I ever express that secret word? O how can I say He is not like this, and He is like that? If I say that He is within me, the universe is ashamed: If I say that He is without me, it is falsehood. He makes the inner and the outer worlds to be indivisibly one; The conscious and the unconscious, both are His footstools. He is neither manifest nor hidden, He is neither revealed nor unrevealed: There are no words to tell that which He is. To Thee Thou hast drawn my love, O Fakir! I was sleeping in my own chamber, and Thou didst awaken me; striking me with Thy voice, O Fakir! I was drowning in the deeps of the ocean of this world, and Thou didst save me: upholding me with Thine arm, O Fakir!Only one word and no second– and Thou hast made me tear off all my bonds, O Fakir! Kabir says, “Thou hast united Thy heart to my heart, O Fakir!”

I played day and night with my comrades, and now I am greatly afraid.

So high is my Lord’s palace, my heart trembles to mount its stairs: yet I must not be shy, if I would enjoy His love.

My heart must cleave to my Lover; I must withdraw my veil, and meet Him with all my body:

Mine eyes must perform the ceremony of the lamps of love.

Kabir says: “Listen to me, friend: he understands who loves.

If you feel not love’s longing for your Beloved One, it is vain to adorn your body,

vain to put unguent on your eyelids.”

Tell me, O Swan, your ancient tale.From what land do you come, O Swan?

to what shore will you fly?

Where would you take your rest, O Swan, and what do you seek?

Even this morning, O Swan, awake, arise, follow me!

There is a land where no doubt nor sorrow have rule: where the terror of Death is no more.

There the woods of spring are a-bloom, and the fragrant scent “He is I” is borne on the wind:

There the bee of the heart is deeply immersed, and desires no other joy.

O Lord Increate, who will serve Thee?

Every votary offers his worship to the God of his own creation: each day he receives service–

None seek Him, the Perfect: Brahma, the Indivisible Lord.

They believe in ten Avatars; but no Avatar can be the Infinite Spirit, for he suffers the results of his deeds:

The Supreme One must be other than this.

The Yogi, the Sanyasi, the Ascetics, are disputing one with another:

Kabir says, “O brother! he who has seen that radiance of love, he is saved.”

The river and its waves are onesurf: where is the difference between the river and its waves?

When the wave rises, it is the water; and when it falls, it is the same water again.

Tell me, Sir, where is the distinction?

Because it has been named as wave, shall it no longer be considered as water?

Within the Supreme Brahma, the worlds are being told like beads:

Look upon that rosary with the eyes of wisdom.

Where Spring, the lord of the seasons, reigneth, there the Unstruck Music sounds of itself,

There the streams of light flow in all directions;

Few are the men who can cross to that shore!

There, where millions of Krishnas stand with hands folded,

Where millions of Vishnus bow their heads,Where millions of Brahmas are reading the Vedas,

Where millions of Shivas are lost in contemplation,

Where millions of Indras dwell in the sky,

Where the demi-gods and the munis are unnumbered,

Where millions of Saraswatis, Goddess of Music, play on the vina–

There is my Lord self-revealed: and the scent of sandal and flowers dwells in those deeps.

Between the poles of the conscious and the unconscious, there has the mind made a swing:

Thereon hang all beings and all worlds, and that swing never ceases its sway.

Millions of beings are there: the sun and the moon in their courses are there:

Millions of ages pass, and the swing goes on.

All swing! the sky and the earth and the air and the water; and the Lord Himself taking form:

And the sight of this has made Kabir a servant.

The light of the sun, the moon, and the stars shines bright:

The melody of love swells forth, and the rhythm of love’s detachment beats the time.

Day and night, the chorus of music fills the heavens;

and Kabir says”My Beloved One gleams like the lightning flash in the sky.”

Do you know how the moments perform their adoration?

Waving its row of lamps, the universe sings in worship day and night,

There are the hidden banner and the secret canopy:

There the sound of the unseen bells is heard.

Kabir says: “There adoration never ceases; there the Lord of the Universe sitteth on His throne.”

The whole world does its works and commits its errors: but few are the lovers who know the Beloved.

The devout seeker is he who mingles in his heart the double currents of love and detachment,

like the mingling of the streams of Ganges and Jumna;In his heart the sacred water flows day and night;

and thus the round of births and deaths is brought to an end.

*

Behold what wonderful rest is in the Supreme Spirit!

and he enjoys it, who makes himself meet for it.

Held by the cords of love,

the swing of the Ocean of Joy sways to and fro;

and a mighty sound breaks forth in song.

See what a lotus blooms there without water!

and Kabir says “My heart’s bee drinks its nectar.”

What a wonderful lotus it is,

that blooms at the heart of the spinning wheel of the universe!

Only a few pure souls know of its true delight.

Music is all around it, and there the heart partakes of the joy

of the Infinite Sea.

Kabir says: “Dive thou into that Ocean of sweetness:

thus let all errors of life and of death flee away.”

 

Behold how the thirst of the five senses is quenched there!

and the three forms of misery are no more!

Kabir says: “It is the sport of the Unattainable One:

look within, and behold how the moon-beams

of that Hidden One shine in you.”

There falls the rhythmic beat of life and death:

Rapture wells forth, and all space is radiant with light.

There the Unstruck Music is sounded;

it is the music of the love of the three worlds.

There millions of lamps of sun and of moon are burning;

There the drum beats, and the lover swings in play.

There love-songs resound, and light rains in showers;

and the worshipper is entranced in the taste of the heavenly nectar.

Look upon life and death;

there is no separation between them,

The right hand and the left hand are one and the same.

Kabir says: “There the wise man is speechless;

for this truth may never be found in Vadas or in books.”

I have had my Seat on the Self-poised One,

I have drunk of the Cup of the Ineffable,

I have found the Key of the Mystery,

I have reached the Root of Union.

Travelling by no track,

I have come to the Sorrowless Land:

very easily has the mercy of the great Lord come upon me.

They have sung of Him as infinite and unattainable:

but I in my meditations have seen Him without sight.

That is indeed the sorrowless land,

and none know the path that leads there:

Only he who is on that path has surely transcended all sorrow.

Wonderful is that land of rest, to which no merit can win;

It is the wise who has seen it,

it is the wise who has sung of it.

This is the Ultimate Word:

but can any express its marvellous savour?

He who has savoured it once,

he knows what joy it can give.

Kabir says: “Knowing it, the ignorant man becomes wise,

and the wise man becomes speechless and silent,

The worshipper is utterly inebriated,

His wisdom and his detachment are made perfect;

He drinks from the cup of the inbreathings

and the outbreathings of love.”

 

There the whole sky is filled with sound,

and there that music is made without fingers and without strings;

There the game of pleasure and pain does not cease.

Kabir says: “If you merge your life in the Ocean of Life,

you will find your life in the Supreme Land of Bliss.”

What a frenzy of ecstasy there is in every hour! and the

worshipper is pressing out and drinking the essence of the

hours: he lives in the life of Brahma.

I speak truth, for I have accepted truth in life;

I am now attached to truth, I have swept all tinsel away.

Kabir says: “Thus is the worshipper set free from fear;

thus have all errors of life and of death left him.” There the sky is filled with music: There it rains nectar: There the harp-strings jingle, and there the drums beat. What a secret splendour is there, in the mansion of the sky! There no mention is made of the rising and the setting of the sun; In the ocean of manifestation, which is the light of love, day and night are felt to be one. Joy for ever, no sorrow,–no struggle! There have I seen joy filled to the brim, perfection of joy; No place for error is there. Kabir says: “There have I witnessed the sport of One Bliss!” I have known in my body the sport of the universe: I have escaped from the error of this world.. The inward and the outward are become as one sky, the Infinite and the finite are united: I am drunken with the sight of this All! This Light of Thine fulfils the universe: the lamp of love that burns on the salver of knowledge. Kabir says: “There error cannot enter, and the conflict of life and death is felt no more.” —

[?]= unable to transliterate Sanskrit or Arabic characters

Leave a comment

Filed under Mystic Poetry, poetry

Mad News from MindFreedom

VIGIL TO MOURN THE LOSS OF MS. ESMIN ELIZABETH GREEN AND CONDEMN
VIOLATIONS OF HUMAN RIGHTS

July 25, 2008 VIGIL and Demonstration – Kings County Hospital
Center, Building G, New York, USA

Please POST/ Forward

WE THE PEOPLE

Contact: Lauren J. Tenney, MA, MPA, Psychiatric Survivor FOR
IMMEDIATE RELEASE Cell: 516-319-4295
e-mail: lauren@theopalproject.org
website: http://www.theopalproject.org
http://tinyurl.com/green-vigil

WE THE PEOPLE Call for an End of Abuse, Torture, and Neglect in the
Wake of Ms. Green’s Death While Detained at Kings County Hospital
Center’s Psychiatric Emergency Room.

Advocates, human rights activists, and community members are holding
a vigil and demonstration to mourn the death of Ms. Esmin Elizabeth
Green. WE the PEOPLE are calling attention to the reported horrific
inactions and complete neglect that Ms. Green was subjected to while
detained at the Kings County Hospital Center’s Psychiatric Emergency
Room, 451 Clarkson Avenue Brooklyn, New York 11203.

According to the Associated Press, after being involuntarily
committed to the institution, Ms. Green sat waiting for a bed to
become available for nearly 24 hours before she collapsed on to the
floor. She lay there helpless for nearly an hour until she received
medical attention, which came too late[i]. Further, according to the
New York Civil Liberties Union, facility staff possibly falsified
documents, stating that Ms. Green was “up and went to the bathroom”
and was “‘sitting quietly in the waiting room’ – more than 10 minutes
after she last moved”[ii]. The surveillance tape shown on CNN Video
portrays Ms. Green dying on the floor as people pass her by[iii]. In
fact, on the Internet, one can find a mass of comment on this tragedy
by individuals all over the world – a question repeatedly asked,
“Where is the humanity?”

All people must be treated with dignity, humanity, and respect. We
must not tolerate violations of human rights that individuals who are
assigned psychiatric labels often endure.

We ask you, wouldn’t you be depressed and possibly even ‘agitated’ if
you were going to lose your home and employment? Reportedly, this is
what led to Ms. Green’s commitment[iv]. Any one of us could be
labeled with a psychiatric diagnosis and subjected to inhumane
‘treatment’ if we are thought to be ‘agitated’, particularly if we
are poor.

How many more people labeled with “mental illness” will be subjected
to torture and neglect before something is done to protect human
rights within psychiatric systems? David Oaks, Executive Director of
MindFreedom International states, “I encourage us all to reflect on
the need for a deep nonviolent revolution in the field of mental
health
, far beyond the “reforms” that have gotten us to where we are
today, with televised death via neglect of a mother of six”.

In 1875, a New York Times article cites abuses of inmates at the
Kings County Asylum, spurred by Mr. Nelson Magee, a former inmate.
Then-Commissioner Norris reacts to the investigation, “This sort of
thing is very common among lunatics; they are always imagining
themselves in great danger of being killed by their keepers”v. How
many more centuries have to go by before action is taken to end these
abuses and neglect?

WE the PEOPLE stand for change. We have been abused by the
psychiatric system. Our brothers and sisters continue to be abused
and murdered, as evidenced by Ms. Green’s untimely demise. Massive
human rights violations happen every day in psychiatric institutions
but this horrific inaction was captured on videotape. We will call
attention to the every day tortures committed in the name of
psychiatric “help” including diagnosing life’s challenges as
”illness,” forced pharmaceuticals, restraint, seclusion, and
electric shock treatment (ECT) with a Vigil to honor Ms. Green’s
memory beginning at 2 PM.

There are many questions as to what led to Ms. Green’s death. Was it
in any way related to the toxic and debilitating drugs that people
labeled with “mental illness” are intimidated, coerced, and forced
into taking? A thorough investigation is necessary to determine the
extent of the torture, ill treatment and other human rights
violations
involved in this case and in the practices of the
institution as a whole. We must stand united to demand social
justice, equal rights, and environments free from torture and detention.

On July 25, 2008, we invite all people to join us and stand united in
support of the demand that everyone receive the full benefit of their
human rights and the preservation of their liberty, dignity and respect.

Who: All People.

What: Candle Light Vigil to mourn the loss of Ms. Esmin Elizabeth
Green and condemn violations of human rights.

Why: WE THE PEOPLE call for an end of abuse, torture, and neglect in
the wake of Ms. Green’s Death on June 19, 2008, while detained at
Kings County Hospital Center’s Psychiatric Emergency Room.

Where: Kings County Hospital Center, Psychiatric Emergency Room,
Building G. 606 Winthrop Street Brooklyn, NY 11203

Date: July 25, 2008

Time: 5 PM – 10 PM, Candle Light Vigil, 8:30 PM

We welcome your involvement as an organizational co-sponsor or an
individual endorser of this effort. If you would like to speak at
this event, please contact us.

WE THE PEOPLE

###

For more information or to schedule an interview, please contact:

Contact: Lauren J. Tenney
Cell: 516-319-4295
e-mail: lauren@theopalproject.org
website: http://www.theopalproject.org

Contact: David W. Oaks, Director, MindFreedom Phone: 541-345-9106
e-mail: office@mindfreedom.org
website: http://www.mindfreedom.org
http://tinyurl.com/green-vigil

REFERENCES

[i] Retrieved July 8, 2008 from http://hosted.ap.org/dynamic/stories/
H/HOSPITAL_WARD_DEATH?SITE=OHRAV&SECTION=HOME&TEMPLATE=DEFAULT

[ii] Retrieved July 8, 2008 from http://www.nyclu.org/node/1876

[iii] Retrieved on July 8, 2008 from http://www.cnn.com/2008/US/07/01/
waiting.room.death/index.html

[iv] Retrieved July 8, 2008, from http://www.cnn.com/2008/US/07/03/
hospital.woman.death/index.html

[v] Retrieved July 9, 2008 from http://query.nytimes.com/mem/archive-
free/pdf?res=9F00E6D8103CE63ABC4851DFBE66838E669FDE

http://tinyurl.com/green-vigil

~~~~~~~~~~~~~~

Urgent action: Please forward to all appropriate places on and off
Internet, especially to concerned people and groups in New York State.

More:

Mad Pride

MindFreedom International News – 14 July 2008
Nonviolent Revolution in Mental Health!

Mad Pride 2008 Skyrocketing!

Mad Pride has been growing fast! Below are just a few of the Mad
Pride events this month in many nations.

Coverage in the Sunday New York Times, international events that draw
thousands of participants (Thank you, MindFreedom Ireland!), and the
skyrocketing enthusiasm of Mad Pride organizers, all point to the
great strides taken by this movement over the last six months. Mad
Pride celebrates the human rights to be different, and promotes human
rights in mental health.

According to MindFreedom’s calendar of events, the second half of
2008 will see this trend continue.

Here is a brief look into a few Mad Pride 2008 events:

UNITED STATES:

This weekend, from July 11 – 13, 2008 at the Country Fair in Eugene,
Oregon, you can visit the “Doors of Expression” booth and uncover Mad
Pride at this famous, annual event.

Mental Patients Liberation Alliance holds 28th Annual Bastille Days
Demonstration, “HELP Stop Psychiatric Oppression.” from July 11 – 14,
Albany, New York.

CANADA:

From July 14 – 20, Toronto will celebrate Mad Pride Week, including
their second annual bed push.

Through July 14, in Vancouver, British Columbia, Gallery Gachet is
holding panel discussions, performances, readings and film events to
celebrate “World Mad Pride.”

AFRICA:

On July 14, MindFreedom Ghana is holding its third annual Mad Pride
event! This year’s slogan: “UNITED AGAINST HUMAN RIGHTS VIOLATIONS IN
MENTAL HEALTH”

On July 17, in Cape Town, South Africa, there will be a Mad Pride
Parade followed by a celebration and music.

UNITED KINGDOM:

On July 16, in Leeds, West Yorkshire, there will be music, poetry and
more, celebrating Mad Pride.

Bonkersfest 2008 will be held on July 19, in London. This is probably
the largest Mad Pride event in the UK (Last year it drew three
thousand participants!) and will be held at the site of the infamous
Bedlam Hospital.

For updates and more, visit our Mad Pride Campaign page:

http://www.mindfreedom.org/campaign/madpride

~~~~~~~~~~~~~~~~~~~~

ACTION: Please forward this Mad Pride News to all of your mad and mad-
friendly friends, relatives and colleagues!

~~~~~~~~~~~~~~~~~~~~

Mad Pride = United Strength in Numbers = You!

JOIN OR RENEW EARLY IN MINDFREEDOM INTERNATIONAL!

http://www.mindfreedom.org/join-donate

* Win human rights campaigns in mental health.

* End abuse by the psychiatric drug industry.

* Support self-determination of psychiatric survivors.

* Promote safe, humane, effective options in mental health.

* Show your MAD PRIDE!

Join here:

http://www.mindfreedom.org/join-donate

MindFreedom is a nonprofit human rights group that unites 100 sponsor
and affiliate groups with individual members.

MindFreedom is one of the very few totally independent activist
groups in the mental health field with no funding from governments,
drug companies, religions, corporations, or the mental health system.

MindFreedom is the only group of its kind accredited by the United
Nations (NGO Consultative Roster Status).

All human rights supporters are invited to join MFI by donating here:

http://www.mindfreedom.org/join-donate

~~~~~~~~~~~~~~~~~

MindFreedom International Office:

454 Willamette, Suite 216 – POB 11284; Eugene, OR 97440-3484 USA

web site: http://www.mindfreedom.org
e-mail: office(at)mindfreedom(dot)org
MFI office phone: (541) 345-9106
MFI member services toll free: 1-877-MAD-PRIDe or 1-877-623-7743 fax:
(541) 345-3737

Please forward!

Leave a comment

Filed under CS/X movement, Links: Recovery, Mental health recovery, mindfreedom news, wellness and systems change

Not thinking right and I know it…

No poetry this post, sorry. Tune in next time, soon.

Yes I take drugs.

I take 4 different psych meds, not high dosages and I’m unable to notice any annoying side-effects. There have been several times in my mentally-ill life that I have been med free and doing fine, thank-you. The last few years I have needed, or seemed to need, some chemical support to stay operational. This doesn’t count the insulins I need to survive type 1 diabetes.

Late last week I got 2 calls in one day telling me I was “not selected” for jobs I interviewed for, both were jobs I’m very well qualified for, thought I did great in both interviews. The clincher on one was when they said they found someone who was more experienced in a particular area. It just so happens that, no ego here, I am probably the very most experienced and qualified in this specific area in the state. Made me feel like a loser. Made me feel paranoid about my mental-health rep and the possibility that people I had listed as references who are so very supportive to my face may actually be undermining my job search. “Objection!”…” But Judge, this goes directly to the subjects state of mind!”… “Okay then, I’ll allow it…”

A few days back (…4?…5?) I ran out of 2 of the most important psych meds. One helps me sleep (among other things) and the other is an SSRI. Now, I know all about abrupt SSRI withdrawal, personal and observational data gained at some difficulty. But, thing is, I have been broke. Can’t afford even the co-pays. Also, 2 days back I ran out of one of my insulins; again, can’t have what ya can’t pay for. My sleep has been very odd- it;s like I’m sleeping but can’t tell if I’m awake or dreaming. I sweat very heavily (yeah,too much info, sorry).

I have been getting more and more “weird”. I have thoughts and perceptions I know aren’t right. It has become harder to carry on even simple conversations with family members because I have to keep editing myself, trying not to say something too strange or something that might worry my wife or younger son (who still lives at home).

I haven’t brought my lack of meds up at all. I know we don’t have money. I have feared that my wife would call my mother or some other family member. I am so sick of begging, being dependent. It reinforces my feeling of being a pathetic loser. BTW- I know that this is also probably an example of not thinking right.

I haven’t called anyone who might be helpful- well, I called someone but they weren’t answering and so I stopped trying. I have become more and more paranoid that people will find out how worthless, pathetic and crazy I am. I have become increasingly afraid to talk to anyone.

Friday, 4 days ago?, I was already losing it but the day went to hell way beyond what I could handle. But I tried to handle it anyway. I did everything wrong, at least in the eyes of the people around me, especially my wife. Her car broke down (I’m no mechanic) and she took my car to work, swapping it back later in the day. The bank account was overdrawn and I ended up using the last of my unemployment money to get the balance back to zero.

Thing is: I was so shocked to find the account overdrawn. I knew exactly what was in the account and the day before I talked to my wife about not using the “apparent” balance showing on the account- it was just ghost money that would soon be gone. She made 2 relatively small payments- for gas and $20 cash (perfectly legit uses for money)- and added to the two $35 overdraft fees put us a hundred bucks in the hole. I saw in our future a black hole of overdraft fees that would continue to pile up until we couldn’t do anything about it. (This is not an unreasonable fear in itself- it’s happened before.)

Comedy break:

During the day she wrote another hundred dollars in checks to cover important medical co-pays she needed to get her insurance set up with a new provider. I talked our son into getting a $100 cash advance to cover the upcoming overdraft.

She got a ride home from work after suggesting that we get a “drink” on the way when I picked her up.

She got home from a co-worker. She indicated she still wanted to go get a drink.

We’re still on Friday. Instead of taking her to get a drink I took my son to his bank to get cash and then went to our bank to deposit cash. I went home. My wife was half asleep but I could tell she was mad. Why had I prioritized going to the bank (before it closed)? Why had I spent all our cash covering the bank overdraft?

So, I made it worse. I went out and found a mechanic neighbor who said they would help me diagnose the problem with her car. We found that things were much worse than I could fix on my own (or without money to invest in a real mechanic).

By the time I got back I knew I was in the doghouse and in the very back of said animal abode.

The next day she was still mad. I was beginning to really lose it. My brain was definitely not functioning well. Being incapable of reasonable conversation, made the relationship problems worse. I was even more afraid to tell that I had no meds and was experiencing alternate reality that was more and more scary.

I didn’t go to Friends Meeting- I was too agoraphobic at this point. I didn’t wantto have to talk to anyone if possible.

Comedy break:

The saga continues: So, over the course of the weekend I got weirder and weirder. Tried to stay inconspicuous. Not a complete success.

This morning: cried from 8 am to 10. Then walked around the neighborhood trying to find cans and bottles that I could take to Safeway and get some oatmeal and toilet paper (I judged these to be the most important things I could get). Cried from 12 to 1pm, until got a call from my wife at work. She asked me what was wrong. “nothing”. She said she was going to call my mother and get money to buy meds. I begged her not to do this. She hung up. I cried some more. She called back and said that she would go to the pharmacy and write hot checks to cover the meds. I sobbed until she arrived with a bag of drugs. I had shit in my head that I will not share with you, kind strangers, but just know that it was very bad.

Now I have taken pills, even ones I don’t usually take (some sedatives). My wife has some difficulty being around me when I’m “not right”. I have stayed mostly in our room and either just kept my eyes closed or read a stupid crime novel.

Why did all this happen? How come I let it get so far? Why can’t I call on people when I need help? (Wait: I can answer that last one- Most people don’t want to hear from you when you are “not right”. They want to have you feel better, right now. When you don’t get better right away they get nervous, impatient and can’t wait to hang up. Also, I am not good on the phone. I can’t usually talk comfortably to people I can’t see.)

Comedy break:

Madness, feeling like you can’t think right, feeling pathetic/ worthless and suicidal- these are not good ways to be. I don’t go out of my way to feel like this. In fact I have put an extraordinary amount of time and thought into making sure I don’t go there. But sometimes, the best laid plans….

I know I’m not alone. I spend a lot of time with people who walk the edge. I know that slipping is common and that isolating is a very common response to the slippery slope.

Later this week I will be teaching 3rd through 5th graders at a conference in Corvallis, as part of a children’s program designed to allow parents to attend and give children a pint-sized dose of the conference topic: That of God in Everyone (It’s a Quaker conference- North Pacific Yearly Meeting of the Religious Society of Friends.

The main result of this engagement that relates to issues at hand is that I will have to postpone the monthly radio show till next week- a full week after the Full Moon. So:

Mad Liberation by Moonlight is postponed until Friday 7/25, I think.

More pictures:

Ouch, Spidey, that lookedlike it hurt…

What is it with me and comic book characters today?

BTW- this following false Advertisement was done by a woman who is “sick of the pink, flowery, sound of music” shtick that goes with feminine hygiene products.

Good luck, stay safe, do as I say, not as I do, please be as happy as the circumstances will allow, if not more so. Until next time…(soon)…

Leave a comment

Filed under animated gif, animation, comedy relief, CS/X movement, Mad Radio, Mental health recovery, personal story, pictures, silly

I just got the internet turned back on today: Sufi Poetry Fest!

For some reason my ISP insists that I send them money regularly. Sometimes this conflicts with other priorities (such as eating, paying rent, etc.). I have also updated the music page- some new recordings, some remixed, some just monkeyed with; check it out.

Today mostly I wanted to share some Sufi poetry from various periods (717 CE to the 1300s) and from Persia to Turkey.

Farid ud Din Attar– a mystic poet who lived approximately 1119 -1230 CE. His best known work is Conference of the Birds, an elaborate allegory of the soul’s quest for reunion with God.

Intoxicated by the Wine of Love.
From each a mystic silence Love demands.
What do all seek so earnestly? ‘Tis Love.
What do they whisper to each other? Love.
Love is the subject of their inmost thoughts.
In Love no longer ‘thou’ and ‘I’ exist,
For Self has passed away in the Beloved.
Now will I draw aside the veil from Love,
And in the temple of mine inmost soul,
Behold the Friend; Incomparable Love.
He who would know the secret of both worlds,
Will find the secret of them both, is Love.

translation Margaret Smith -The Jawhar Al-Dhat

In the dead of night, a Sufi began to weep.
He said, “This world is like a closed coffin, in which
We are shut and in which, through our ignorance,
We spend our lives in folly and desolation.
When Death comes to open the lid of the coffin,
Each one who has wings will fly off to Eternity,
But those without will remain locked in the coffin.
So, my friends, before the lid of this coffin is taken off,
Do all you can to become a bird of the Way to God;
Do all you can to develop your wings and your feathers.”

translation by Andrew Harvey and Eryk Hanut – ‘Perfume of the Desert’

So long as we do not die to ourselves,
and so long as we identify with someone or something,
we shall never be free.
The spiritual way is not for those wrapped up in exterior life.

translation also by Margaret Smith

There’s always room for

Rumi:

The Jesus of your spirit is inside you now.
Ask that one for help, but don’t ask for body-things…

Don’t ask Moses for provisions
that you can get from Pharaoh.

Don’t worry so much about livelihood.
Your livelihood will turn out as it should.
Be constantly occupied instead
with listening to God.

Mathnawi II:450-454

Yunus Emre

He lived in what is now Turkey sometime from 1240-1241 to 1320-21 CE.

The drink sent down from Truth,
we drank it, glory be to God.
And we sailed over the Ocean of Power,
glory be to God.

Beyond those hills and oak woods,
beyond those vineyards and gardens,
we passed in health and joy, glory be to God.

We were dry, but we moistened.
We grew wings and became birds,
we married one another and flew,
glory be to God.

To whatever lands we came,
in whatever hearts, in all humanity,
we planted the meanings Taptuk taught us,
glory be to God.

Come here, let’s make peace,
let’s not be strangers to one another.
We have saddled the horse
and trained it, glory be to God.

We became a trickle that grew into a river.
We took flight and drove into the sea,
and then we overflowed, glory be to God.

We became servants at Taptuk’s door.
Poor Yunus, raw and tasteless,
finally got cooked, glory be to God.

translated by Kabir Helminski and Refik Algan – ‘The Drop That Became Sea’

Ask those who know,
what’s this soul within the flesh?
Reality’s own power.
What blood fills these veins?

Thought is an errand boy,
fear a mine of worries.
These sighs are love’s clothing.
Who is the Khan on the throne?

Give thanks for His unity.
He created when nothing existed.
And since we are actually nothing,
what are all of Solomon’s riches?

Ask Yunus and Taptuk
what the world means to them..
The world won’t last.
What are You? What am I?

translated by Kabir Helminski and Refik Algan – ‘The Drop That Became Sea’

We entered the house of realization,
we witnessed the body.

The whirling skies, the many-layered earth,
the seventy-thousand veils,
we found in the body.

The night and the day, the planets,
the words inscribed on the Holy Tablets,
the hill that Moses climbed, the Temple,
and Israfil’s trumpet, we observed in the body.
Torah, Psalms, Gospel, Quran-
what these books have to say,
we found in the body.

Everybody says these words of Yunus
are true. Truth is wherever you want it.
We found it all within the body.

translated by Kabir Helminski and Refik Algan – ‘The Drop That Became Sea’

Your love has wrested me away from me,
You’re the one I need, you’re the one I crave.
Day and night I burn, gripped by agony,
You’re the one I need, you’re the one I crave.

I find no great joy in being alive,
If I cease to exist, I would not grieve,
The only solace I have is your love,
You’re the one I need, you’re the one I crave.

Lovers yearn for you, but your love slays them,
At the bottom of the sea it lays them,
It has God’s images-it displays them;
You’re the one I need, you’re the one I crave.

Let me drink the wine of love sip by sip,
Like Mecnun, live in the hills in hardship,
Day and night, care for you holds me in its grip,
You’re the one I need, you’re the one I crave.

Even if, at the end, they make me die
And scatter my ashes up to the shy,
My pit would break into this outcry:
You’re the one I need, you’re the one I crave.

“Yunus Emre the mystic” is my name,
Each passing day fans and rouses my flame,
What I desire in both worlds in the same:
You’re the one I need, you’re the one I crave.

Rabi´a al-Adawiyya

was born in Basra around 717 CE. As a child, after the death of her parents, Rabi’a was sold into slavery. After years of service to her slavemaster, Rabi’a began to serve only the Beloved with her actions and thoughts. Since she was no longer useful to the slaveowner, Rabi’a was then set free to continue her devotion to the Beloved.

Rabi’a held that the true lover, whose consciousness is unwaveringly centered on the Beloved, is unattached to conditions such as pleasure or pain, not from sensory dullness but from ceaseless rapture in Divine Love.

Rabia was once asked, “How did you attain that which you have attained?”
“By often praying, ‘I take refuge in You, O God, from everything that distracts me from You, and from every obstacle that prevents me from reaching You.'”

I have two ways of loving You:
A selfish one
And another way that is worthy of You.
In my selfish love, I remember You and You alone.
In that other love, You lift the veil
And let me feast my eyes on Your Living Face.

Doorkeeper of the heart:versions of Rabia. Trans. Charles Upton

The source of my suffering and loneliness is deep in my heart.
This is a disease no doctor can cure.
Only Union with the Friend can cure it.

translation by Andrew Harvey and Eryk Hanut – ‘Perfume of the Desert’

I have made You the Companion of my heart.
But my body is available to those who desire its company,
And my body is friendly toward its guest,
But the Beloved of my heart is the guest of my soul.

translation by Andrew Harvey and Eryk Hanut – ‘Perfume of the Desert’

Brothers, my peace is in my aloneness.
My Beloved is alone with me there, always.
I have found nothing in all the worlds
That could match His love,
This love that harrows the sands of my desert.
If I come to die of desire
And my Beloved is still not satisfied,
I would live in eternal despair.

To abandon all that He has fashioned
And hold in the palm of my hand
Certain proof that He loves me—
That is the name and the goal of my search.

Andrew Harvey and Eryk Hanut – ‘Perfume of the Desert’

Sanai (1118-1152) (Abû’l-Majd Majdûd b. Adam Sanâ’î) is revered as one of the first great mystical poets of Persia. He produced many lyrical poems and a religious epic, The Walled Garden of Truth or the Enclosed Garden of Truth (The HADîQATU’ L-HAQîQAT).

Don’t speak of your suffering — He is speaking.
Don’t look for Him everywhere — He’s looking for you.

An ant’s foot touches a leaf, He senses it;
A pebble shifts in a streambed, He knows it.

If there’s a worm hidden deep in a rock,
He’ll know its body, tinier than an atom,

The sound of its praise, its secret ecstasy —
All this He knows by divine knowing.

He has given the tiniest worm its food;
He has opened to you the Way of the Holy Ones.

‘The Puzzle’

Someone who keeps aloof from suffering
is not a lover. I choose your love
above all else. As for wealth
if that comes, or goes, so be it.
Wealth and love inhabit separate worlds.

But as long as you live here inside me,
I cannot say that I am suffering.

translation by Coleman Barks – ‘Persian Poems’


‘The Way of the Holy Ones’

Don’t speak of your suffering — He is speaking.
Don’t look for Him everywhere — He’s looking for you.

An ant’s foot touches a leaf, He senses it;
A pebble shifts in a streambed, He knows it.

If there’s a worm hidden deep in a rock,
He’ll know its body, tinier than an atom,

The sound of its praise, its secret ecstasy —
All this He knows by divine knowing.

He has given the tiniest worm its food;
He has opened to you the Way of the Holy Ones.

translation by Andrew Harvey and Eryk Hanut – ‘Perfume of the Desert’

Those unable to grieve,
or to speak of their love,
or to be grateful, those
who can’t remember God
as the source of everything,

might be described as a vacant wind,
or a cold anvil, or a group
of frightened old people.

Say the Name. Moisten your tongue
with praise, and be the spring ground,
waking. Let your mouth be given
its gold-yellow stamen like the wild rose’s.

As you fill with wisdom,
and your heart with love,
there’s no more thirst.

There’s only unselfed patience
waiting on the doorsill, a silence
which doesn’t listen to advice
from people passing in the street.

translation by Coleman Barks

1 Comment

Filed under Free Music, Mystic Poetry, new music, poetry, Spirituality

Poetry Monday: Lao Tzu, Rumi, Tagore

Lao Tzu-

Labels

Labels
words, verbs and lines
serve to define
that which can be named
yet infinity cannot be charted
eternity cannot be corraled

uncircumferenced presence
centered everywhere, within without
cannot be defined
with the scribing of a line

bare of name
source of creation
bearing names
mothers gives birth

in the beginning one
from one to two
one becomes another
thus a mother

feeling separate
reaching outward
for union found within
reaching inward

union remains
movements still

freed of desire, fulfilled in Unity
filled with desire manifesting reality
form is defined
thought needs mind
letting go of thought
we move beyond space and time

no piece, know peace
these two are the same
through unfoldment
in appearance different

the secret Mystery
divergent unity
gateway doorway reality

***

Rumi:

    This World Which Is Made of Our Love for Emptiness

    Praise to the emptiness that blanks out existence. Existence:
    This place made from our love for that emptiness!

    Yet somehow comes emptiness,
    this existence goes.

    Praise to that happening, over and over!
    For years I pulled my own existence out of emptiness.

    Then one swoop, one swing of the arm,
    that work is over.

    Free of who I was, free of presence, free of dangerous fear, hope,
    free of mountainous wanting.

    The here-and-now mountain is a tiny piece of a piece of straw
    blown off into emptiness.

    These words I’m saying so much begin to lose meaning:
    Existence, emptiness, mountain, straw:

    Words and what they try to say swept
    out the window, down the slant of the roof.

    Un-named poem:

I died from minerality and became vegetable;

And From vegetativeness I died and became animal.

I died from animality and became man.

Then why fear disappearance through death?

Next time I shall die

Bringing forth wings and feathers like angels;

After that, soaring higher than angels –

What you cannot imagine,

I shall be that.

Ode 2180

From these depths depart towards heaven;
may your soul be happy, journey joyfully.
You have escaped from the city full of fear and trembling;
happily become a resident of the Abode of Security4 The Abode of Security seems to be an allusion to heaven which is sometimes called “the abode of peace” (dar-al salam) by Rumi as against “the abode of pride” (dar-al gorur) i.e., the world..
If the body’s image has gone, await the image-maker; if the
body is utterly ruined, become all soul.
If your face has become saffron pale through death, become a
dweller among tulip beds and Judas trees.
If the doors of repose have been barred to you, come, depart
by way of the roof and the ladder.
If you are alone from Friends and companions, by the help of
God become a saheb-qeran5 Saheb qeran is a person who is born under a happy conjunction of the planets. [lord of happy circumstance].
If you have been secluded from water and bread, like bread
become the food of the souls, and so become!

***

Tagore

Flower

Pluck this little flower and take it, delay not! I fear lest it

droop and drop into the dust.

I may not find a place in thy garland, but honour it with a touch of

pain from thy hand and pluck it. I fear lest the day end before I am

aware, and the time of offering go by.

Though its colour be not deep and its smell be faint, use this flower

in thy service and pluck it while there is time.

Fool

O Fool, try to carry thyself upon thy own shoulders!

O beggar, to come beg at thy own door!

Leave all thy burdens on his hands who can bear all,

and never look behind in regret.

Thy desire at once puts out the light from the lamp it touches with its breath.

It is unholy—take not thy gifts through its unclean hands.

Accept only what is offered by sacred love.

Leave This

Leave this chanting and singing and telling of beads!

Whom dost thou worship in this lonely dark corner of a temple with doors all shut?

Open thine eyes and see thy God is not before thee!

He is there where the tiller is tilling the hard ground

and where the pathmaker is breaking stones.

He is with them in sun and in shower,

and his garment is covered with dust.

Put off thy holy mantle and even like him come down on the dusty soil!

Deliverance?

Where is this deliverance to be found?

Our master himself has joyfully taken upon him the bonds of creation;

he is bound with us all for ever.

Come out of thy meditations and leave aside thy flowers and incense!

What harm is there if thy clothes become tattered and stained?

Meet him and stand by him in toil and in sweat of thy brow.

Journey Home

The time that my journey takes is long and the way of it long.

I came out on the chariot of the first gleam of light, and pursued my

voyage through the wildernesses of worlds leaving my track on many a star and planet.

It is the most distant course that comes nearest to thyself,

and that training is the most intricate which leads to the utter simplicity of a tune.

The traveler has to knock at every alien door to come to his own,

and one has to wander through all the outer worlds to reach the innermost shrine at the end.

My eyes strayed far and wide before I shut them and said `Here art thou!’

The question and the cry `Oh, where?’ melt into tears of a thousand

streams and deluge the world with the flood of the assurance `I am!’

Song Unsung

The song that I came to sing remains unsung to this day.

I have spent my days in stringing and in unstringing my instrument.

The time has not come true, the words have not been rightly set;

only there is the agony of wishing in my heart.

The blossom has not opened; only the wind is sighing by.

I have not seen his face, nor have I listened to his voice;

only I have heard his gentle footsteps from the road before my house.

The livelong day has passed in spreading his seat on the floor;

but the lamp has not been lit and I cannot ask him into my house.

I live in the hope of meeting with him; but this meeting is not yet.

    2 Comments

    Filed under poetry, Spirituality

    Sunday Basket

    My older son, Andrew has been in town for a visit. He leaves tomorrow morning. Yesterday we took a short hike near home- south side of Powell Butte- to find shade in the heat. Today we went to a movie (Wall-E) to find air conditioning. Pictures from yesterday:

    On a different note, tadpoles are changing quickly- they are leaving the tank on my patio and going into the wide world. As of today all of the marginal habitat along the Springwater Corridor and the drainage ditches on Powell Butte have dried up. Hundreds or thousands of polliwogs did not make it to maturity. I saved about 60 this year. (Tadpole rescue is an annual effort.)

    Other found pictures with no particular theme:

    execution - flawless. planning - fail

    Daisy Vs. the Squirrel:

    bat to the head

    empty threat

    Lose weight, no dieting!

    RPS

    Learning

    The goal:

    2 Comments

    Filed under animated gif, animation, Family pictures, Frogs, pictures, silly, Uncategorized

    The world is so full of a number of things…

    I’m sure we should all be as happy as kings.

    I digress….

    had to post this picture:

    Mental Health and Mortality

    Per our last post, we reported that in Oregon one-third of people treated for mental health diagnosis die before age 50. If you add “co-occurring disorders”, 89 percent of people treated for both mental
    illness and substance abuse die before age 50. These numbers are in line with but also in excess of the national data regarding mortality and mental health.

    It’s important to note that the figures are based on people who are receiving treatment. It’s also key to point out that these mortality statistics are getting worse not better. Add to these findings the fact that the most significant factor involved in recovery from mental illness is the length of time one has received treatment; that is to say that the longer one receives treatment, the less likely they are to recover.

    What conclusions can be drawn?

    1. Mental health treatment is possibly preventing people from getting well and
    2. Our advances in treatment (new drugs, etc.) are killing us faster and faster.

    Is anybody listening? Not much, it would appear. In Oregon we are building a new state hospital system at a cost of half a billion dollars. Our mental health treatment centers and support agencies are stuck in a time warp, oblivious to the facts, ignorant of the potential for recovery and blindly pushing the drugs that are killing us at a rate unprecedented for any other major public health issue.

    (Note on the incredibly simpleminded continued reliance on large public institutions: I am of the opinion that as long as we have a system that believes that “some people just have to kept in institutions”, we will have a system that incarcerates a large number of people in these settings. It is only when we say that “no one should be treated this way” that we will begin the to take meaningful steps toward an effective community approach to treatment and support. The state hospitals will continue to suck up the majority of the resources at the expense of real treatment, real recovery and real self-determination. The old arguments that we need these places because of “court mandated patients”, “public safety” and the less acknowledged factor of state employees’ unions who resist the shift to community agencies and settings are are all red herrings and scare tactics with no real value in the discussion. Between 1987 and 1999, with fits and starts, the state dismantled it’s large public institutions for people with developmental disabilities (Fairview Hospital and Training Center/ FHTC, the last and largest). The biggest factor in the process taking so long was the repeated arguments mentioned above. In the end, these all turned out to be empty threats that had no value other than their ability to slow things down. Meaningful, secure and recovery based supports can be engineered in the community. Oregon has already done it before. Some of you may say that their is no correlation or equivalence between these populations but that is also just a lie perpetrated by those who would hold back the future. Fairview held hundreds of individuals with mental illness, hundreds who were court-mandated and thousands of unionized staff. It was once a small city; It is now a field of weeds and grass. I was there. I worked at part-time Fairview in the 1970s and was involved throughout the process of it’s closure.)

    The institution is not the only problem. Existing community services are often mismanaged, poorly staffed read the Annapolis Coalition report or in Oregon, the Governor’s report) and typically way behind in their acceptance of recovery and self-directed supports (compare your local clinic with the National Statement on Mental Health Recovery).

    Are there any silver linings?

    We have a consumer/ survivor movement that is gradually learning to work together and spread our collective wings. We have tiny (microscopic in a national sense) new programs that are consumer directed. use peer supports or embrace self-directed service models. We also have a growing emphasis (in Oregon) on “wellness” as a focus and recovery as a real possibility for all people facing mental health challenges (see: http://www.oregon.gov/DHS/mentalhealth/index.shtml).

    Gradually, the public mental health system is becoming aware of the impact of trauma in the lives of people with mental health issues. While some studies show that as much as 95% of persons with a mental health diagnosis are trauma survivors, our treatment programs are remarkable for their tendency to re-traumatize the afflicted. Effective treatment for trauma has come a long way but is still not widely used. At the same time we are seeing the long term effects of mal-treatment that ignores the trauma factor and leads to greater and greater difficulty in the individual’s ability to recover.

    New thoughts are emerging and new ideas slowly joining the mainstream. This from a publication from SAMHSA:

    Today’s mental health system has failed to facilitate recovery of most people labeled with severe mental illnesses, leading to increasing expressions of dissatisfaction by people using services, their families, and administrators. Only a fundamental change of the very culture of the system will ensure that the changes made in policy, training, services, and research will lead to genuine recovery. In accordance with the President’s New Freedom Commission on Mental Health report, mental health consumers and survivors, representing diverse cultural backgrounds, should play a leading role in designing and implementing the transformation to a recovery-based mental health system.

    This paper provides an outline of how consumers/survivors can catalyze a transformation of the mental health system from one based on an institutional culture of control and exclusion to one based on a recovery culture of self-determination and community participation. At the national policy level, this paper recommends that consumers develop and implement a National Recovery Initiative. At the State and local policy levels, State and local recovery initiatives are recommended. On the direct service level, the paper provides a road map for developing services, financing, and supports that are based on self-determination and recovery.

    A recovery-based mental health system would embrace the following values:

    • Self-determination
    • Empowering relationships based on trust, understanding, and respect
    • Meaningful roles in society
    • Elimination of stigma and discrimination

    Changing the mental health system to one that is based on the principles of recovery will require a concerted effort of consumers and allies working to bring about changes in beliefs and practices at every level of the system. The building of these alliances will require the practice of recovery principles of trust, understanding, and respect by all parties involved.

    (The full article re: above can be found at http://mentalhealth.samhsa.gov/publications/allpubs/NMH05-0193/default.asp)

    Another positive sign is the increasing clinical and scholarly acknowledgement of the role of spirituality in the recovery process (see: http://www.wiley.com/WileyCDA/WileyTitle/productCd-0787947083.html, http://akmhcweb.org/recovery/rec.htm, http://www.mentalhealthworld.org/34ddnspirit.html, http://www.spiritualcompetency.com/recovery/lesson1.html to name a few resources).

    Peer delivered services are supposed to be rolled out in Oregon during the coming year. The state has made necessary changes in it’s Medicaid Waiver to allow billing for peer mentors and service providers.

    While the overall system seems to be riding a hand basket to hell, the growing awareness, solidarity and action emerging from the Consumer/ Survivor/ Ex Patient movement is on a collision course with the system that is, was and wishes to always be. It is either a slow motion train wreck or the harbinger of a revolution in mental health treatment.

    Things are on the cusp of a change. Part of that change may need to be the collapse of the current system (including our current, mostly pitiful, community service models) under the weight of it’s own silliness. If it happens, this will not be a bad thing.
    If all the case managers, therapists, pills and hospitals for treatment of mental illness disappeared over night…

    On balance, would we be better or worse off?

    On a completely different note:

    Pictures I’ve found interesting lately-

    windshield grime-art:

    I has a cleaning…

    Prince says “hai”

    Always remember

    To check the music page for new stuff.

    BTW- I’d love to hear from you about your own music. Do you have any home recordings I can post? Please, no professional quality shite.

    Finally,for today, a little video

    Avalokiteshvara – Treasury of Compassion

    http://www.youtube.com/watch?v=F7_cYRAIdTs

    2 Comments

    Filed under animated gif, animation, buddhism, CS/X movement, Free Music, Links: Recovery, Mental health recovery, Music, new music, pictures, silly, Uncategorized, wellness and systems change

    If you aren’t Mad you aren’t paying attention

    News from MindFreedom and the Bend Weekly News

    A State of Oregon study says that Oregonians in the mental health
    system die earlier than the general public.

    Bend Weekly News in Bend, Oregon, USA covered this news in the below
    story, which includes a link so you can download the State of Oregon
    study, “Measuring Premature Mortality among Oregonians,” published 10
    June 2008.

    ~~~~~~~~~~~

    http://www.bendweekly.com/Statewide-News/15699.html

    Report: One-third of mentally ill Oregonians die before 50

    Jun 13, 2008 by Bend_Weekly_News_Sources

    Oregonians with serious mental illness are dying years earlier than
    their neighbors in the general population, and a grassroots health
    movement is under way to reverse this trend.

    The Oregon Department of Human Services Addictions and Mental Health
    Division (AMH) has teamed with consumers of mental health services
    and their families, health care professionals and others to implement
    a statewide wellness initiative aimed at improving mental and
    physical health and longevity.

    Death comes before age 50 for one third of those treated for mental
    health problems, according to results of a seven-year AMH mortality
    study. A staggering 89 percent of people treated for both mental
    illness and substance abuse die before age 50. The average lifespan
    of someone who is dually diagnosed is 45.1 years, which equates to an
    average 34.5 years of potential life lost.

    The recent study, titled “Measuring Premature Mortality among
    Oregonians,” compared the death records of persons who received
    public substance abuse and/or mental health treatment with the
    general population.

    The early death toll among this segment of Oregonians falls in line
    with similar results from national and state studies. More
    importantly, it brings into focus what many individuals with mental
    illness
    already knew; by taking charge of their health, habits and
    lifestyle they can add years – and quality – to their lives, said Bob
    Nikkel, DHS assistant director for addictions and mental health.

    “National research and this study make it clear that persons being
    treated for substance abuse and mental health problems have many
    risks that may bring on early death,” said Nikkel. “Our most critical
    imperative is to help individuals with mental illness live better and
    longer lives.

    “Mental health and substance abuse is an important quality of life
    issue for Oregonians,” he continued. “Dying prematurely not only
    destroys human potential, but it has an economic impact as well.”

    The AMH study showed substance abuse and mental health clients have
    higher risks of death associated with suicide, homicide and
    unintended injuries. In addition, they are economically disadvantaged
    and vulnerable to many diseases that cause death. For example,
    antipsychotic medications used to treat someone with mental illness
    are known to elevate the chance of dying from cardiac arrest; others
    may lead to diabetes.

    The mortality study is available on the DHS Web site at:

    http://www.oregon.gov/DHS/addiction/publications/
    msur_pre_mort_6_2008.pdf

    Nikkel said a DHS/AMH wellness committee is working to improve the
    health and longevity of people with mental illness by drawing on
    scientific research, literature and successful practices by user
    groups. Here are some of the committee’s guiding principles:

    *** We must treat and support the whole person;

    *** Care coordination and wellness screening are essential;

    *** Access to a range of health care options and basic health care
    must be afforded to all Oregonians;

    *** Early intervention and prevention across the lifespan saves
    lives, makes a difference in years of productive life lost, and
    improves quality of life;

    *** Medication management and empowerment equips individuals with the
    tools and strength to ask questions and work with treatment providers
    to find healthier and effective ways to support recovery and
    wellness; and

    *** Disparities in health care coverage and access to service must be
    overcome, along with finding culturally appropriate treatment programs.

    Committee members are seeking funding for grassroots-level programs
    that encourage education and lifestyle changes and for peer-to-peer
    support services.

    For more information visit the DHS wellness Web site at:

    http://www.oregon.gov/DHS/mentalhealth/index.shtml

    On a different note-

    Talking with my guests at KBOO radio last night we got into a discussion of stories we all had from psychiatric hospitals, some funny, some not and different experiences we had with mental health providers. I think Ann had the idea that we need to have a “secret shopper” project; people could go to various agencies and then provide reviews of the services, respect and treatment they receive. We could then publicize the information to produce a guide that would be useful to folks. A related idea was that we should collect current information regarding services and treatment at hospital psych wards. On the air we got into a discussion about the relative merits of Portland area acute care facilities. Conclusions? We agreed that, at least before their remodel, Adventist was the worst place to stay but had the best food. Our choice for best local facility (as if anyone ever has a choice) was Providence NE. We also agreed that the showers at St Vincent’s leak and flood the rooms.

    We had a great time on the program and gave away tickets to the National Air Guitar Championships being held at Dante’s in downtown Portland. The winner was chosen from among callers on the basis of how many diagnoses they had been given. A good time was had by all.

    New Music- added last night on the Music Page

    Check it out.

    Pictures friom my son’s blog- Better Bees than Bears

    He’s drawing pictures on the sidewalks of San Francisco.

    Ready to breathe

    The first tadpole crawled out of the water last night at about 11 pm. Won’t be long before they all head off into the world. Sniff.

    Leave a comment

    Filed under CS/X movement, Free Music, Frogs, Mad Radio, Mental health recovery, mindfreedom news, mp3, new music, pictures

    Wednesday, June 18th, 2008

    Second Warning!

    Mad LiberationBy MoonLight

    KBOO Radio 90.7 FM
    1- 2 a.m. Late Friday night
    (yes, I know that it is technically Saturday morning- relax, it’s just a radio show)
    June 20th, 2008

    Dedicated to Everyone
    who has ever been given a psychiatric label, to anyone who experiences mental health challenges and to anybody who has the misfortune (or good fortune) of being awake at that hour.

    You can participate!

    Call in at (503) 231-8187
    Please call in! Set your alarm!

    Friday nights from 1 am to 2 am usually following the full-moon, will be a segment on KBOO radio (90.7 on your fm dial, to the left of NPR), also streamed on the internet on their website, http://www.kboo.fm/index.php will be time for of Mad Lib by Moonlight. The program is part of the usual Friday night show, The Outside World.

    Flier for printing- post it at your place of bidness!

    mlbm62008

    Check out new music on the music page-

    I added 2 songs today.

    Pictures

    I’m sure you know people like this:

    Dignity-

    Street sign in Hong Kong-

    Graffiti-

    The cat is the hat-

    New tadpole shots!

    They have front legs!!

    I’m also seeing signs that some of the tadpoles are becoming newts- the barest expression of gills; I can’t capture on camera yet. Soon

    Leave a comment

    Filed under CS/X movement, Frogs, Mad Radio, Mental health recovery, new music, pictures, silly