Category Archives: personal story

Mad Poetry from the Asylum

Introductionwish

Poems are by JN- a patient in the 50 building on Ward F. Printed with his permission but anonymous because he didn’t want to mess with all the written approval red tape- which has to be approved by the hospital and somethings just don’t find there way through the process.

JN is a big man- over 6’6″ I think. He wears suspenders and has very broad shoulders. My first impression on meeting him was “Paul Bunyan”. He never hurts anyone- no record of him assaulting staff or patients that I could find.

(JN has published a book of poetry. He has no copy but knows some libraries where it is available. He wrote it in the 1990’s.)

Still, staff are afraid of him. Especially small, female staff. He has a temper and when he’s angry he raises his voice. Usually, it’s over some small issue of arbitrary rule compliance.

Example: the soda machine in the hall outside the ward was out of product in the morning at 10 a.m. when it is on the ward schedule that they can go in the hallway with staff to get a soda from the machine. The machine was filled by noon. At 2 :00 p.m. JN asked to be able to go out to the hallway (6 feet from the ward door) with staff to buy a soda. He was told “No. The time for buying soda is 10 a.m.” JN said, “But the soda machine was empty. We didn’t get our soda at 10 a.m. Why can’t we get something now?” Staff: “That’s the rule. You know the rule. No soda. Wait until tomorrow.” JN raises his voice, red n the face, pointing his finger at the staff person,  one more minor indignity piled on top of so many others, “I am so sick of your rules! I’m sick of being treated like a child!” Staff: “That was a verbal threat. I’m putting it in your chart that you threatened me.”

Being charted as making a verbal threat means that he will have no privileges- sometimes it can mean “ward restriction”- meaning that even some of the small spaces available to sit with others or by yourself, are off limits. Sometimes it means they won’t let you go with other patients to the “yard” for fresh air. There are levels of privilege given within the confines of what is already an extremely restricted space. Level zero is the worst.

JN has not been above level zero in the year or so he has been locked up this time around. He does not expect to ever be above level zero. He has at least 8 more years in the hospital as assigned by the PSRB (the Psychiatric Security Review Board- an agency of the state courts).

Sometime I’ll post JN’s description of how he ended up in the hospital- it will blow you away. It started with a psychotic break, being told what to do by voices. No one was harmed.

BTW- not all of JN’s poetry is as heartbreaking as this- some is inspiring. You know how great it is when you are dreaming and find out you can fly? Sometimes reading his poems I feel like crying and flying at the same time.

I will be posting more of JN’s work over time. Maybe we’ll get permission to show his name- he’d like that. The guy that does the hospital newsletter (which never has patient-produced content since I’ve worked there) says he will print one of JN’s poems in next month’s edition. I’ll be waiting.

love_heart1Girlfriend

written 2/21/09 6:25 p.m.


We watched a butterfly be born into the world

Held hands at a scary film

Thought silly jokes were funny

Smiled with our eyes

I love you was spoken a lot

Mingled with other couples

Broke up once or twice

People talked about our relationship

She wrote when I was gone in jail

This is where we failed

My time was longer than her love

Have a picture of her I can’t tear up

It looks like she is shaking her finger at me in the picture

Wish I wouldn’t have made my mistake

Stakes were too high for me

Alone again with 40 men

Contemplation

written 2/21/09, 5:30 p.m.

The sentences flowed with suicide contempt

Depression is in the suggestion note

He was a perfectionist in writing what was said

It started with “To Whom it may concern”

It was the sadness in-between that will catch your heart

It wasn’t his dear concern that frightened me

It was the truth of his light that shined through

He was the only one feeling

Feeling like life wasn’t much living worth

More of his emotional turmoil churning the past

At last he was drained and insane

Mentally whipped- to no return to serenity

This is was his suggestion

Void was full of that dark stuff

Nothing to carry him to the next moment

At this second he was dead

lotus

All blessings to you, JN, with your deep compassion for the pain of others, your courage in the face of utter dark, with your warrior spirit-heart that lets loose the birds of language you call poems.

I love that you have new poetry for me every time I see you in your prison even though you hadn’t written in years before we met.

My thanks, my prayers for your trust and faith.

kerouac-quote

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Goodnight Bird

My bird, Daisy, died yesterday. I loved “that stupid bird” (as she was known by everyone in the family but me). We don’t know why she died. She was only 6 years old- very young for a parrot. She has been eating fine, has been more well behaved than usual lately.

I raised Daisy, hand fed her when she was a baby chick. She thought I was her mother.

When I was out of work I spent a lot of time with her. Lately I realize how much I relied on her for support. Over the past 6 years she has also been with me regularly at my jobs when I was working. In my new job she couldn’t come with me and she had to spend a lot more time by herself than she was used to. She was mad at me and had some behavior problems related to being by herself (parrots are very emotional animals). So I have given her lots of attention when I’m home and got into the habit of making sure she spent time with me before I went to work- which required me to get up a half an hour earlier (my job involves a vanpool commute that has me out of the house by 5:45 am and home around 7 pm).
The last week or so she seemed to be adjusting. She has been happier.
The night before last she was so sweet. She was especially affectionate, wanted her head rubbed but not being obnoxious at all. She talked up a storm, mostly “Hi!” or “Hello Bird! Are you a bird?” or about being a good bird, a pretty bird or asking questions of a similar nature (are you a good bird? are you a pretty bird?) and near bedtime she spent some time singing in her tone deaf way “I love love love good daisy bird, daisy is a pretty good girl, love love love”.
I always loved the songs she made up when she was sleepy- they were so bad.
Then yesterday morning when I got up at 4:30 she was dead.

I’ve realized that I was very used to having her around.

I loved that stupid bird.

goodnight-bird

(click if the picture doesn’t animate)

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What was I thinking?

stillness

12/09/08
Today on route to work (riding in the vanpool with seven other long-distance

commuters) I was listening on my mp3 player to a talk by the Dalai Lama on the

Heart Sutra. My mind wandered into some thoughts that arose during meeting for

worship at the Friends Meetinghouse on Sunday. These are some of the thoughts

that drifted through:

 

Stillness (or emptiness or balance) is the source of all things. Movement (or

content or imbalance) arises from stillness. The world of seperate things

arises from relative motion. Beauty, suffering and gladness are all produced by

the arising motion from the field of stillness.

 

The appearance of things is that the world is always in motion. Motion arises

from imbalance. For example: solar energy makes some parts of the atmosphere warmer,

creating an imbalance in pressure that creates wind, the engine of weather and

climate.

 

Using the same analogy (the living motion of the processes that support life on earth), water finds it’s level, seeks balance. Outside forces (e.g. the radiation produced by the sun or by the earth’s core) moves water from the bottom of the gravity well to the upper atmosphere where it eventually loses that energy, falling to the earth to make streams, waterfalls, rivers and springs on it’s journey back to the bottom of the gravity well. During this process water feeds and sustains life.

 

I have often thought about how it is imbalance/ imperfection that gives rise to

beauty. If things are in balance, there is no motion, no beauty and no

gladness. Through imbalance and the seeking of balance, come birth and death.

When the seeking ends, stillness reigns and emptiness replaces content. In

perfect balance motion does not arise and all things lose there seperateness.

blue_peace_sign 

Sometimes I feel like I’m in the middle of a stumble- like my imbalance is

propelling me forward into something unknown. I have the sensation of falling

into mystery. Sometimes it feels as though the world is a thin movie screen and

I am about to walk through it. It is as though balance, emptiness, stillness lies

just beyond the veil of appearances and any minute I will fall into it.

inner_peace_under_a_tree 

Sometimes when I close my eyes, I can feel the rush of time like a wind. I

sense that just behind that wind is timelessness, the flash of this moment in

perfect peace, the wholeness of myself and the world.

don__t_be_afraid_yellowman_by_voln

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Happy Birthday, Only Daughter

butterfly

song:

predlightrunnerhappybirthday112108

Erin would be 29 years old today. Tonight we’ll have cake. We’ll blow out her candles. It’s a ritual, it’s comforting in a way. Yes: There will be tears.

grief

I am at work. I should probably not be writing in my blog. Too bad.

I’m sad, tired, but-

I’m not in a panic,

I know what day it is,

I’m not seeing dead people,

I’m not crying (right now),

I’m not throwing up…

Progress. It’s been a lot of years but it gradually gets easier or at least less dramatic.

deathcarriesachild

So, today I’ll be sad. I’ll pray. I’ll meditate. I’ll pray some more. I’ll let the wind blow through the hole in my heart. And, after a very long time, tomorrow will come.

hands_depression_grief

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I’m Employed (and other stuff)

I was hired a couple days ago, start work on Monday (11/3/08). Peer Recovery Specialist at the Oregon State Hospital (OSH), also known as the “notorious Oregon State Hospital”.

My “Hire Letter” click for full size):

Other stuff

McCain is a hard man:

Never kick a child:

Consumer confidence (click for full size):

When I grow up:

Song sent by a friend… Let’s pretend that the Iraq war isn’t like Vietnam…okay?

for-rick-john-mccutcheon-lets-pretend

John Prine- still makes me cry….

14-sam-stone-live

Mad Radio- new links:

http://fullmoonradio.wordpress.com/

Stay up to date on mental health consumer/ survivor radio and related information.

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The dream of lost love

A song I’ve re-recorded today. It’s been known by various names over the past 15 or so years. It is ambiguously about lost love but it’s more complicated than that. The motivation for the song was my daughter’s death but it absorbed other feelings and memories along the way.

The words, annotated:

In the years before your broke my heart I never thought that you could do it
So I never stopped to wonder if you would

[It never even crossed my mind that I could lose Erin. From when she was a baby I felt
connected to her and even though our relationship was difficult I couldn’t conceive of it being
over]

In the sunlight of that certainty I slowly fell asleep
knowing you were close beside me and that everything was good

[Ah, well, there’s a line in Carl Sandburgs poem “Little Word, Little White Bird” where he refers
to one “falling asleep in an afternoon sunfall” and waking up with their heart as “cold and dumb
as a polished stone”- It is this sleep of love forgotten that echoes in this line]


In the dream that came to visit in the time of which I speak
The storm of judgment raged across the land

[When Erin’s mom was having an affair- and I knew she was, she was gone all night much of
the time- I came across a stack of love letters from her “amour”… I slept with Erin on her little
bed…]

In a cold and barren desert we were among the only living
But we faced that road together and we walked it hand in hand

[I dreamed that she and I were survivors of some apocalyptic scenario- it underscored the way I
thought we were- that even if everything else were to go away we’d still be there]

I’m only here to tell you that it’s all right now
And that even though you took me from your will
Do you ever think about me, does it ever make you smile
Did you know I always loved you, do you know I love you still

[I wonder these things about everyone I’ve ever loved- do you?]

Even though I just assumed that you’ld be standing with me here

Still perhaps upon that desert we will gaze
I will surely be there with you, if there are survivors
I will take your hand in mine at the ending of all days


Weren’t we there when this world alive became
Do you recall the mountains rising up in praise
We’ll be there when the Lion calls the stars all home by name
We will be together at the ending of all days

[I read the Chronicles of Narnia to all my kids, starting with Erin- The first book describes how
Aslan, the great Lion, creates the world with his song, in the final book in the series Aslan calls
the stars from the sky, naming each one, and leads the heroes of the various stories on a race
through the layers of existence, to the core of reality, of which the “real” world is just a
shadow…the last part is sung several times in the style of something you’d hear at a tent revival]

Here’s the song:

pthedreamoflostlove

Here are some cute sleepy kittens-

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About my dad & New old song again

Gone Beyond

This is a song I wrote in 1993 a year after my father died. The chorus is borrowed from “The mantra which releives all suffering”- Gate gate pāragate pārasamgate bodhi svāhā (for more info about the mantra go here). The English translation- Gone Gone, Gone Beyond Beyond, Hail the Goer (or something like that).

Here’s what the mantra looks like:

My relationship with my dad was complicated. I really didn’t like him for a long time, and not because he was a bad guy. He was a good man, a spiritual man, who went through some heavy stuff. When I was a teenager (and before) his alcoholism was at full swing. He attempted suicide a few times around then, when I was, oh, 15-16. My older brothers and sisters had long before moved out, I became the main witness, besides my mom, of his self-loathing.

He was never unkind to anyone, no matter how drunk he was. All of his meanness was directed at himself.

He also had developed diabetes and sometimes when he drank he would have a severe reaction and become unconscious. On more than one occasion, I came home from school to find him on the floor of the entry way. I couldn’t tell if he was alive or dead (remember, he was also sharing with me his suicide plans on a daily basis). I would step over his body, without checking for a pulse and go to my room, hating him.

After a few hospital stays and some frightening situations with a gun (one that left a hole in our kitchen floor and almost killed both my parents), my dad quit drinking. For years I had a combination of respect and disgust to do with my dad. As years went by I grew to respect him more and the disgust faded away. I didn’t talk with him much but I liked him. I know he was filled with guilt about his alcoholism even so many years later- I don’t know if he ever forgave himself. I don’t believe so.

He was diagnosed with lung cancer several weeks before he died. His doctor had neglected to review his chest x-rays, which he had annually because of emphysema (and asbestos exposure in the navy). The x-rays sat for 3 months until he called his doctor to ask why he hadn’t received the usual report. This prompted the physician to check the images and he found what looked like a small tumor and he had my dad come in for a follow-up. At the follow-up they saw the the small tumor had become very large. My dad was told that with chemo and radiation they could extend his life for up to a year.

One thing I wanted to tell him was that he was a great Grandpa. He loved my kids and they loved him. Not much of a dad, but a really good Grandpa.

He lasted almost a month and a half. What actually killed him was congestive heart failure brought on my a reaction to a dye injection he was given (for a test checking the advance of the tumor). On his last day his legs and feet swelled up so much he couldn’t walk. He was denied hospitalization when my mom took him in to Kaiser emergency. They sent him home and said he should rest. He was dead before morning.

A year and a few months later I was still processing. I felt like I somehow hadn’t succeeded in making for the years I hated him. I decided to go to the beach- Short Sands, below Cannon Beach, for any of you familiar with the Oregon coast. Short Sands beach had a small camp ground reachable only by trail- no RV’s, tent/ back-pack camping only.

While there I spent a lot of time meditating and watching the ocean. I also talked to my father. He has a sailor most of his life and I felt it appropriate to have this out with him at the ocean. I wrote this song on my last morning there. It was a real high- my heart seemed open, a burden lifted from my soul (if that doesn’t seem too corny). I went home to my family. I slept well,with no dreams.

The following morning I walked into my daughter’s room to find her dead by her own hand. That is a different story (and many different songs).

So, first, here are the lyrics to the song:

Gone Beyond

At the end of the day, by the side of the road in the cool of the breeze
I am knowing
Rest like the weary, peace as the river in the rush of the
water flowing
On the dark of the road I open my heart to the light on the path
you are showing
Deep and silent my source that I strain to perceive- hidden by all my doing
and going

Chorus:
Gone Gone, Gone Beyond Beyond-
Hail the Goer (X2)

I’ve walked in the storm, my face to the wind until I could not tell
raindrops from tears
Or I’ve stood on the mountain, my arms in the sky, rejoiced in the spirit
as it appears
Early in the day it was whispered that we must act as our stories unfold follow the mystery
until it clears
Now my heart is so still I am reduced to a breath- I will go to the dawn
as it nears

(chorus)

In this moment of life, for this flash of a breath, through the songs of our laughter
and crying
Miraculous heart, mysterious soul, barely seen through desire
and trying
In an instant we’re free- as on the wings of a dream- through sky and through clouds
we go flying
Where we stand at the edge of the world that we know- wonder where do we go
when we’re dying

(chorus)

This is the song:

p-gone-beyond1008

I’m also adding it to the music page.

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I’m Interwebbing from the Libarry

Didn’t pay my bill so the home internet is on vacation. Maybe later this week if there’s enough money to meet more essential needs in my unemployment check or maybe in 2 weeks when my wife gets paid. (BTW- using “wife” to represent life-partner because it wouldn’t be right to use her real name. It’s one thing broadcastibng my shit all over the interweb but it’s another to put her out in the Blogoshere”.)

Sucks to be poor, but not much really. We have food. The lights are on. The water hasn’t been turned off yet (later this week if not paid).

My wife works. Together between her pay and my unemployment we make about $3200 a month.

We can’t get foodstamps or other help because our major money eater is healthcare- I pay almost $00 a month for my insurance plus another $400 for co-pays (insulin, psych meds, other mostly diabetic supplies, doctor and shrink visits). Healthcare doesn’t count as a deduction from income for foodstamops or other public assistance. Can’t even get help with utilities.

So- let’s see how this comes out.

$3200 income

minus rent ($1000) = $2200, minus medical ($1200 including wifes meds and co-pays) = $1000, minus food and hygeine (about $500- still feeding a large 19 year old who is in school) = $500, minus car insurance ($200) = $300, minus gas for my job hunting ($100) = $200, minus electricity ($125- lowball) = $75, minus water ($75) = zero, minus gas/garbage/internet/ phone service/ clothing, birthdays/ etc. (oops! doesn’t matter how much those things cost because we don’t have the money).

So, every month is a matter of juggling what we can’t pay and getting deeper in the hole. Last month we had to park the cars because our insurance lapsed. Well, that should be okay, right? Nope- the bus fares just went up to $2.50 per ride. And wife’s job depends on car- she gets reimbursed for her mileage but with gas prices this high it doesn’t cover all costs so car has to be bailed out. And many of my job interviews are nowhere close that I can get to by bus. The bank account is in the red perpetually. We might as well just close it.

Whine, whine whine. Many folks have it worse. Hell, we had it much worse many times. Bankrupt twice. House repossessed. Home burned down last spring. Wife out of work for years.

No music or pictures today. The library computer won’t take my jumpdrive.

So, it’s a good thing I didn’t find any jobs because I wouldn’t be able to access/ attach my resume and other stuff.

Hey! Good things happen every day, if you know where to look.

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Daisy Track

Whenever I go out walking with my bird, people come up and get in her face and say “Does he talk?”
I say, she doesn’t talk to strangers (which is generally true). Mostly she talks to get attention and so people who are real interested in her don’t rate a conversation.
Tonight I thought I would try to record her- she was not very cooperative. She made cat noises and squawked. Then I tried to get her to whistle the Andy of Mayberry theme song. She just whistled off-key (her usual thing). I stuck her on her perch and left her with the microphone still on and went to do other stuff. For a while she mumbled a little song to herself (this is one of her night-time things- she makes up songs that don’t make any sense and sings them to herself in a soothing but mumbly voice. I came back in the room and she made some other noises at me.
Overall, not a good sample of her talking. She has a lot of things she says but getting her to do it on cue is impossible. She talks when and if she wants, usually when you want her to shut up. Sometimes she says things that I just don’t know where it comes from. One time when the family was watching TV and Daisy was in the room and feeling left out she stood up on top of her cage, spread her wings and said “I can fly!” in a loud “robot” voice.
You just never know.

birddaisytrack

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Mental Health Round-up

Unlike the Pendleton Roundup there will be no bull(s).

We’ve known this for a while- the evidence simply piles up:

Lilly, J&J Antipsychotics Don’t Top Old Drugs in Kids (Update1)

By Rob Waters and Tom Randall

Sept. 15 (Bloomberg) — Best-selling antipsychotic medicines by Eli Lilly & Co. and Johnson & Johnson caused more side effects and were less effective for children with schizophrenia than a little-used 30-year-old generic drug costing one-fourth as much.

For the study, published today in the American Journal of Psychiatry, 116 children ages 8 to 19 were given molindone, an older drug available as a generic, or a newer antipsychotic, either Lilly’s Zyprexa, which generated $4.8 billion in sales in 2007, or J&J’s Risperdal, with $4.7 billion in revenue.

Most children failed to improve on any of the drugs, and side effects were more common in those taking the newer ones. Zyprexa, in particular, caused weight gain and unwanted boosts in insulin, blood fat and signs of liver damage. The trial is the latest in a series of studies finding that the newer, pricier medicines don’t improve treatment for mentally ill patients, researchers said.

“This is yet one more study which has failed to find any significant area of advance or superiority of the second- generation medicines,” said Jeffrey Lieberman, senior author and a professor of psychiatry at Columbia University in New York, in a Sept. 12 telephone interview. The drugs sell because of “very aggressive marketing campaigns and a wish among patients there was something better out there,” he said.

Lilly, based in Indianapolis, fell 28 cents, or less than one percent, to $46.32 at 10:51 a.m. in New York Stock Exchange composite trading. Johnson & Johnson, of New Brunswick, N.J., dropped 1 cent to $70.58.

Pending Application

J&J’s Risperdal was cleared by U.S. regulators last year for treating adolescents with schizophrenia and bipolar disorder. Lilly has a pending application with the U.S. Food and Drug Administration to market Zyprexa to adolescents ages 13 and older, spokesman Jamaison Schuler said in a telephone interview.

The study wasn’t long enough to compare side effects that have been associated with extended use in the older medicines, Schuler said. Those side effects include tardive dyskinesia, or involuntary muscle movements such as repetitive grimacing, blinking and movements of the arms and legs.

“It’s difficult to understand whether or not the findings of this study add any meaningful information based on the authors’ acknowledgement of the limitations of the study,” said Srikant Ramaswami, a spokesman for J&J, in an e-mailed statement today.

(Go here for the full article)

Who knew it could be worse than in Oregon??

N.C.’s mental health disgrace: Nowhere to go but up

var actBookmarkTitle = “N.C.’s mental health disgrace: Nowhere to go but up”;

• published September 14, 2008 12:15 am

There’s no way to comprehend how a patient in a psychiatric hospital that’s been warned for months about unsafe conditions could have been allowed to sit in a chair for 22 hours without food or help while staff members in the room played cards and watched television.

The patient’s experiences sound like something out of a horror movie. Doctors weren’t notified that he had fallen and hit his head while choking on medicine, nursing staff members failed to follow doctor’s orders to check his vital signs and give him fluid and hospital workers were caught falsifying his medical records, a report in the Raleigh News & Observer.

Steven Sabock, 50, died of a heart problem about 22 hours after being left in a chair in the dayroom at Cherry Hospital.

(Go here for the full article)

Of course, we already know what works

For many years, it has been assumed that people who experience severe and persistent mental health difficulties do not recover, leading to low expectations that have been seen to wear away hope and support chronicity (Harrison & Mason, 1993). In the introduction to Mental Illness and Recovery, Ralph and Corrigan (2005) stated that:

Prior to 1990, students of major mental health disciplines learned that the serious mental illnesses were defined as having poor prognoses with progressively downhill courses. Treatment was limited to custodial options. People with these diagnoses had to foster ideas of hope and recovery in a mental health system that viewed serious psychiatric disorders as harbingers of doom. According to the old school, people with serious mental illness needed to accept that normal life was impossible, that dreams of independence were unattainable, and that long-term institutionalization was inescapable. Recovery signaled a monumental revolution in the mental health paradigm. (p. 4)

Recovery is a common term that is generally equated with getting well or getting back to normal (Roberts & Wolfson, 2004). However, when this term is used with respect to mental illness, most people agree that it refers to a process rather than a steady state. Although a clear definition of recovery is elusive and seems to mean different things to different people, most people agree that a person “in recovery” is working to take back control of his or her life and is working toward achieving her or his own goals and dreams. It does not necessarily mean an absence of what might be considered “psychiatric symptoms”.  It does mean learning to relieve difficult feelings and behaviors, and to live well in spite of these difficulties (Ralph & Corrigan, 2005; Roberts & Wolfson, 2004). As people who have a lived experience of mental health difficulties have attempted to define recovery, various themes have emerged (Ralph & Corrigan, 2005). These themes include:

* Recovery is defined in terms of continual growth, increased control over one’s life, and either a redefining or reestablishing of a sense of self in the recovery process.
* Recovery is a highly individualized process rather than a universally defined end state, and requires methods of research than can capture or at least more accurately assess the dynamic and varied nature of the phenomenon.
* Recovery is a nonlinear, ongoing process—people do not move through the recovery process in a predetermined, orderly manner.
* People play an active role in their own recovery process.
* People are the experts on the topic of their own experiences, needs, and their own recovery.
* Hope is an essential ingredient.
* Meaning and purpose in life are necessary to recovery.
* Relapse is part of a process and not a failure. (Davidson & Strauss, 1992; Loveland, Randall, & Corrigan, 2005; Morse, 1997; Ralph, 2000; Strauss & Carpenter, 1981; Young & Ensing, 1999)

Ralph and Corrigan (2005) contend that recovery is concerned with a sense of meaning in life and personal comfort, and is focused on validation of personhood, recognition of common humanity, and tolerance for individual differences. Allott, Loganathan, and Fulford (2003) and (Ralph, Lambert, and Kidder, 2002, June)consider that the turning point in a person’s life, when they begin to focus away from illness and toward recovery, is marked by the individual’s active and responsible engagement with his or her distress and difficulties. Recovery is often described as having a defining moment or a turning point (Allott et al., 2003). Sometimes it is a low turning point before which the person had a hard time moving forward, feeling that they would never be well, and dealing with the grief and anxiety that is commonly associated with loss of health and hope for the future. It is sometimes claimed that recovery is often further delayed by a state of learned helplessness encouraged by the low expectations of mental health professionals. Several authors suggested that a beginning of working toward recovery can often be attributed to talking to peers about mutual experiences and self-help strategies. People begin to regain their sense of self, taking back control and responsibility for their lives (Faulkner & Layzell, 2000; Leibrich, 2001).

Coleman (1999), who has a lived experience of mental distress including institutionalization and who is an advocate for recovery, emphasized that recovery depends far more on self-help and collaboration than on being treated.

Recovery is not a gift from doctors but the responsibility of us all. …. We must become confident in our own abilities to change our lives, we must give up being reliant on others doing everything for us. We need to start doing these things for ourselves. We must have the confidence to give up being ill so that we can start becoming recovered. (Coleman, 1999, p. 7)

(See this for source)

The notion that recovery from severe psychiatric disorder is impossible is now contradicted by impressive and well-known longitudinal studies and the anecdotal experience of many, many people.

In the Japanese Long Term Study (Ralph & Corrigan, 2005), follow-up evaluations were conducted for 105 people with the diagnosis of schizophrenia who had been discharged from mental institutions between 1958 and 1962. Follow-up periods were from 21 to 27 years. Results indicated that 31% were recovered, 46% improved, and 23% were unimproved. Forty-seven percent were fully or partially self-supporting and 31% were again hospitalized. Early stages of the illness course were typically found to fluctuate with regard to social functioning, whereas later stages stabilized to either a stable self-supporting state or a chronic institutionalized state.

Roberts and Wolfson (2004) considered the International Study of Schizophrenia (Harrison et al., 2001) to be the most comprehensive long-term follow-up study of recovery. It included 1633 participants from 14 culturally diverse areas who were studied at 15 years and again at 25 years after diagnosis. The results were in line with previous studies. Outcomes at 15 years and 25 years were favorable for over half of the participants. However, the researchers in this study admit that their studies, like other similar studies, rely heavily on the presence or absence of symptoms and social disabilities, and on resource indicators as outcome indicators rather than indicators that might be defined by the study participants.

Of most relevance to this project is the Vermont Longitudinal Research study (Harding, Brooks, Ashikaga, Strauss, & Brier, 1987).  In this study, 269 people were followed for about 32 years. On average, the people in this study had been ill 16 years, totally disabled for 10 years, and hospitalized in the back wards of the Vermont State Hospital for 6 years. Patients participated in a model rehabilitation program organized around the goal of self-sufficiency, residential and vocational placements in the community, and long term continuity of care. They had been released from the hospital with community supports already in place. At follow up one-half to two-thirds were considered to have improved or recovered, depending on the criteria used. Sixty-eight percent did not display signs or symptoms of schizophrenia. Forty-five percent displayed no psychiatric symptoms at all. More than two-thirds were rated as having good functioning on tests that included both psychological and social criteria. This landmark study was hailed across the country and around the world as evidence that, given intensive education and support initiatives along with medical treatment, recovery from severe mental illness is possible. This finding had a great impact on the mental health field because it was in contrast to the longstanding view that people with mental health symptoms could not get better.

These findings were further supported by the Maine–Vermont Comparison Study (Desisto, Harding, McCormick, Ashikaga, & Brooks, 1995), which used a group-matching design. This study compared the outcomes of 269 people in Maine in similar circumstances with the 269 people in the Vermont Longitudinal Study. However, the Maine patients received standard inpatient treatment and aftercare. Vermont participants were found to be more productive and had fewer symptoms, better community adjustment, and better global functioning than Maine participants. Roughly one half of the Maine participants were rated as having good functioning. The researchers in these studies suggest that the model rehabilitation program utilized in the Vermont study (which will be discussed in the history section of this literature review) gave Vermont participants an earlier opportunity to adapt to life in the community and may explain the better outcomes for these participants.

Anecdotal evidence of recovery from severe mental health difficulties is growing at a rapid pace. Ralph and Corrigan (2005) state that as people have gained more voice around issues that impact their lives, a new understanding of recovery has emerged based on their lived experience (Deegan, 1988). This understanding of recovery was introduced in the 1970s with the rise of the consumer/survivor/expatient movement (Chamberlin, 2002) and is not based on a disease model framework. This view has emanated from individuals who were living with and trying to recover from mental illness and the effects of institutional and other medically based treatment interventions (Chamberlin, 2002). Walsh (1996) suggest that mental illness changes lives irrevocably. She says, “We can never go back to our ‘premorbid’ selves. The experience of disability and stigma attached to it changes us forever. People would not want to go back. Recovery involves growth and an expansion of capacities.” (p.  87) For many people who write about this process, recovery is a personally meaningful goal rather than an abstract construct that is studied academically.

Although Roberts and Wolfson (2004) feel that there is a need to gather and strengthen the evidence base for recovery, they suggest that this can and needs to be a major area for collaboration between people who experience mental health difficulties and care providers. They contend that meta-analyses or randomized, controlled trials provide little guidance on what might make a difference to a person who is working on their recovery.

How does the medical model fit into all of this? Roberts and Wolfson (2004), well-known British psychiatrists, claimed that the medical model is narrowly focused on disease, treatment, and biological reductionism, and contrast this with the broader person-centered focus of recovery models. Ralph et al. (2002), asserted the validity of an evidence base largely composed of personal narrative, and the views of “experts by experience.” At present there is significant tension between the medical model and recovery initiatives. Often their values and language stand in significant disjunction with one another. However, in this research project and in mental health recovery work around this country and around the world, this researcher has found that the medical community, while often unwilling to give up the notion that medical treatment is essential, is discovering that by supporting recovery initiatives and peer support, they experience more successful outcomes (Copeland, 2004c).

From:

Steven J. Onken, Ph.D., Jeanne M. Dumont, Ph.D.; Co-Principal Investigators
Priscilla Ridgway, M.S.W., A.B.D., Douglas H. Dornan, M.S.,
Ruth O. Ralph, Ph.D.; Co-Investigators
Prepared for:
National Technical Assistance Center for State Mental Health Planning,
National Association of State Mental Health Program Directors

Recovery is the reawakening of hope after despair.
Recovery is breaking through denial and achieving understanding and acceptance.
Recovery is moving from withdrawal to engagement and active participation in life.
Recovery is active coping rather than passive adjustment.
Recovery means no longer viewing oneself primarily as a mental patient and reclaiming a
positive sense of self.
Recovery is a journey from alienation to purpose.
Recovery is a complex journey.
Recovery is not accomplished alone—it involves support and partnership.

And we know about the horrible, advancing death rate of people with a mental health diagnosis:

In October 2006, the National Association of State Mental Health Program Directors (NASMHPD) released a report entitled Morbidity and Mortality in People with Serious Mental Illness[i]. Among the report’s findings were the following devastating outcomes for the population with serious mental illnesses:

* Persons with serious mental illnesses are now dying 25 years earlier than the general population.
* Sixty percent of premature deaths in persons with schizophrenia are due to medical conditions such as cardiovascular, pulmonary and infectious diseases.
* Increased morbidity and mortality are largely due to treatable medical conditions that are caused by modifiable risk factors such as smoking, obesity, substance abuse, and inadequate access to medical care.
* Antipsychotic medications have become more highly associated with weight gain, diabetes, dyslipidemia, insulin resistance and the metabolic syndrome.
* Access to adequate healthcare for individuals with serious mental illnesses is greatly impaired by numerous factors.

So- we know that the mental health treatment system/ public mental health system does not work, does not lead to recovery; we know that it in fact is part of the increasing death rate among persons who are “mentally divergent”. What is worth doing?

SAMHSA- Consensus Statement:
The 10 Fundamental Components of Recovery include:

• Self-Direction: Consumers lead, control, exercise choice over, and determine their own path of recovery by optimizing autonomy, independence, and control of resources to achieve a self-determined life. By definition, the recovery process must be self-directed by the individual, who defines his or her own life goals and designs a unique path towards those goals.

• Individualized and Person-Centered: There are multiple pathways to recovery based on an individual’s unique strengths and resiliencies as well as his or her needs, preferences, experiences (including past trauma), and cultural background in all of its diverse representations. Individuals also identify recovery as being an ongoing journey and an end result as well as an overall paradigm for achieving wellness and optimal mental health.

• Empowerment: Consumers have the authority to choose from a range of options and to participate in all decisions—including the allocation of resources—that will affect their lives, and are educated and supported in so doing. They have the ability to join with other consumers to collectively and effectively speak for themselves about their needs, wants, desires, and aspirations. Through empowerment, an individual gains control of his or her own destiny and influences the organizational and societal structures in his or her life.

• Holistic: Recovery encompasses an individual’s whole life, including mind, body, spirit, and community. Recovery embraces all aspects of life, including housing, employment, education, mental health and healthcare treatment and services, complementary and naturalistic services (such as recreational services, libraries, museums, etc.), addictions treatment, spirituality, creativity, social networks, community participation, and family supports as determined by the person. Families, providers, organizations, systems, communities, and society play crucial roles in creating and maintaining meaningful opportunities for consumer access to these supports.

• Non-Linear: Recovery is not a step-by step process but one based on continual growth, occasional setbacks, and learning from experience. Recovery begins with an initial stage of awareness in which a person recognizes that positive change is possible. This awareness enables the consumer to move on to fully engage in the work of recovery.

• Strengths-Based: Recovery focuses on valuing and building on the multiple capacities, resiliencies, talents, coping abilities, and inherent worth of individuals. By building on these strengths, consumers leave stymied life roles behind and engage in new life roles (e.g., partner, caregiver, friend, student, employee). The process of recovery moves forward through interaction with others in supportive, trust-based relationships.

• Peer Support: Mutual support—including the sharing of experiential knowledge and skills and social learning—plays an invaluable role in recovery. Consumers encourage and engage other consumers in recovery and provide each other with a sense of belonging, supportive relationships, valued roles, and community.

• Respect: Community, systems, and societal acceptance and appreciation of consumers —including protecting their rights and eliminating discrimination and stigma—are crucial in achieving recovery. Self-acceptance and regaining belief in one’s self are particularly vital. Respect ensures the inclusion and full participation of consumers in all aspects of their lives.

• Responsibility: Consumers have a personal responsibility for their own self-care and journeys of recovery. Taking steps towards their goals may require great courage. Consumers must strive to understand and give meaning to their experiences and identify coping strategies and healing processes to promote their own wellness.

• Hope: Recovery provides the essential and motivating message of a better future— that people can and do overcome the barriers and obstacles that confront them. Hope is internalized; but can be fostered by peers, families, friends, providers, and others. Hope is the catalyst of the recovery process.

But the absence of these principles in practice is only a small part of the problem.

Other issues are directly in the way of an effective mental health supports system:

from:
http://mhtransformation.wa.gov/MHTG/articles/20080709.shtml

Trauma is among the most significant factors involved in mental illness, and it must be taken into account by caregivers and providers, four prominent speakers told the Trauma-Informed Care Symposium in Yakima on June 11.

The purpose of the symposium was to present information about the impact of trauma, take stock of trauma-related activities and programs already occurring in Washington, and develop priorities for promoting trauma-informed care in Washington.

Tonier Cain, a survivor of trauma, shared her story as one of the speakers. It begins with a severely neglectful mother, a long history of childhood and adult sexual abuse, alcohol addiction from age nine, marriage at age 14, and a drug addiction that led to 66 drug-related convictions.

After being incarcerated numerous times and losing several of her children to the foster-care system, Cain became pregnant again and found a program that helped drug-addicted pregnant women become drug-free and keep their children.

This was the turning point for Cain as for the first time, instead of asking, “What is wrong with you?” one trauma-informed clinician asked, “What happened to you?”

After entering the program, she began working on her trauma issues. In the four years since she completed the program, she has been drug- and alcohol-free, has become a national speaker on trauma issues, has become a board member on several boards of directors, and has become a homeowner and a nurturing mother to her young daughter.

“We would do well to assume that every person who comes to us seeking services is a trauma survivor,” said Dr. Roger Fallot, who opened the symposium with an overview of trauma-informed services.

Dr. Fallot discussed the difference between trauma-informed systems and trauma-specific services. As he explained, human service systems become trauma-informed by thoroughly incorporating an understanding of the prevalence and impact of trauma and the complex paths to healing and recovery into every component of service delivery. Trauma-specific services, on the other hand, refer to specific interventions that directly address trauma and its impact and help individuals heal and move forward in their recovery.

Local trauma champion Laura Merchant gave an overview of a trauma initiative currently taking place in Washington State. Merchant is the Assistant Director at the Harborview Center for Sexual Assault and Traumatic Stress and is involved in a collaborative project with the Mental Health Division that trains clinicians throughout the state in trauma-focused cognitive behavioral therapy (TF-CBT), a psychotherapeutic intervention designed to help children, youth, and their parents overcome the negative effects of traumatic life events.

Merchant discussed the difference between regular cognitive behavior therapy and TF-CBT. TF-CBT emphasizes routine trauma screening for all new clients instead of assuming that, if a client has a trauma background, the client will raise the issue.

Finally, Dr. Brian Sims discussed how to create trauma-informed systems of care. Dr. Sims explained that it makes sense to ask people who have serious mental illness about a trauma history; up to 98% of people who have serious mental illness have a trauma history. Dr. Sims also discussed strategies that mental-health providers can use to facilitate trauma-informed treatment, such as giving consumers choices and treating consumers with respect.

At the end, participants filled out a worksheet in which they identified the three items that they felt were most important in implementing trauma-informed care in Washington State. On the same worksheet, participants could sign up to become “Trauma Champions,” therefore becoming members of the newly-formed Trauma Advisory Group.

The Mental Health Transformation Project (MHTP) sponsored this event, and Jill SanJule, Consumer Liaison for the MHTP, organized the symposium with assistance from Mary Blake, the SAMHSA Project Officer for the Washington State Mental Health Transformation Grant, Susan Salasin, the Project Officer for the National Center for Trauma-Informed Care, and Joan Gillece of the National Association of State Mental Health Program Directors.

SanJule also received input and assistance from a statewide taskforce consisting of Tom Schumacher of the Department of Veterans Affairs, Cheryl Sullivan-Colglazier of the Juvenile Rehabilitation Administration, Ann Christian of the Washington Community Mental Health Council, Peg Evans-Brown of the Department of Vocational Rehabilitation, and Robin McIlvaine of the Mental Health Division. In addition to assisting with planning the event, the taskforce members have also committed to assisting with the next steps in implementing trauma-informed care in Washington.

I would say these things must be a first step to systems change:

  • There should be immediate action to train current professionals and peer providers in mental health / trauma treatment strategies (e.g. EFT or EMDR or other evidence based therapies);
  • The principles of self-determination must be assertively promoted throughout the provider community, adopted as “best practice” and made part of both administrative rules and contracting for mental health services and supports;
  • The “brain disease/ chemical/ medical model of mental health must be discarded and debunked using the existing mountain of research that contradicts this approach (the pharmaceutical industry, while it has a place in treatment for some people, must be taken out of the driver’s seat of medical/ psychiatric education);
  • The training for mental health professionals from the doctorate level to the bachelor’s level must include significant education regarding the fact and circumstances of mental health recovery and the importance of addressing trauma and incorporating self-direction in services.

With these actions, we can begin to implement the recovery principles and National Consensus Statement. Without these fundamental and vital steps, systems change will be a joke at the expense of both the tax payers and the people who are trapped in the Public Mental Hell System.

I will leave you with this story I found on Ron Unger’s blog:

By Sonia Novinsky
Jacqueline came to me about one year ago. She was a beautiful woman, in
her forties and had been diagnosed as a schizophrenic with auditory
hallucinations, depression and an inability to operate in social
environments. Now, after a year, the hallucinations are gone and she is
well adapted to society. Along the way many other benefits
occurred…including relief from anorexia and the cessation of smoking.
Here’s the story.
She arrived in a very depressive state, saying to me: “This is my last
chance. And all I can pay is 10 dollars per session.” It was impossible
to refuse her desperate appeal for help. She said…
“For 9 years now, since my daughter was born, I am taking Haldol, Prozac
and other medications because Psychiatrists considered me an incurable
schizophrenic patient. I’ve been sleeping most of my daytime during all
these years.
After a traumatic event when my daughter was born I fell into a
depression. I started listening to Mary’s voice (Jesus’s mother)
GC COMMENT: her former psychiatrist diagnosed this an auditory
hallucination.
and I had some inappropriate behaviors, including a kind of anorexia,
with hospitalization. I heard about your work with Energy and I want to
try it. I believe that this could help me to get rid of medication and
my disease. The only reason I don’t kill myself today is because my
religion forbids me to do it.”
My first thought was: should I do EFT for a psychotic client? But the
despair I saw in her eyes touched me and I decided to try. She said she
would do anything to be free from Haldol. In fact, she threw away her
drugs and cut off communications with her psychiatrist. She refused to
take drugs because of the negative effects on her and made it a
requirement that I work with her on that condition.
At the first moment she told me that she had a supportive husband and
parents, and also wonderful children and that made her feel more guilty
for being a mentally ill person. She complained of smoking too much, of
having difficulties to rest and sleep. She said she was also 30 kg more
than her ideal weight, partly because of the antipsychotic medication.
During the last 9 years she was afraid to drive a car, which was normal
to her before her crisis.
The last psychiatrist she saw was very oppressive, telling her she had
an incurable mental illness and was obliged to take Haldol for the rest
of her life. When she arrived at my office she was very angry with all
psychiatrists and therapists who took care of her during all these
years. They gave her no hope: just labels and drugs.
Before investigating core issues, I worked for some weeks on our
rapport, trying to help her on her self esteem and trying to develop
some trust in our connection. She was very upset with the kind of
relationship she had with her psychiatrists and therapists. A hierarchy
was always present, and she was the inferior part of it, all the time.
Her objections about the treatment were never validated by them.
I agreed to try to work with her without medication (her choice) only if
we could see each other almost everyday and talk on the phone whenever
necessary. She agreed to tap with me on the phone whenever I asked her.
In this case it is very important to stress how strong was her intention
to get rid of any medication because they condemned her to be out of a
normal life.
In this case, besides EFT, praying was used almost everyday. She bought
“A Course in Miracles” and did her lessons everyday. The first result,
from the combination these items, was that hallucinations started fading
down and disappeared completely.
I will make a summary of the main topics we worked with EFT. We did EFT
hundreds of times. I learned a lot with Gary, so I do a free talk while
tapping, in a way that I can’t reproduce here, introducing humor and
installing new meanings and possibilities. She was entirely open to work
with EFT.
We started working with the most apparent sensation she was having at
the moment she arrived. In my experience you can start with this state,
even if it is not a core issue. When this layer is reached, even if you
don’t clear it completely, it gives room for the traumatic memories to
show up. Meanwhile you get the basic trust needed to work deeply.
Defenses hold back slowly while the person calms down. At the same time
inner positive resources become more available for working with more
delicate issues. So we started working on her self image and self
esteem, while tapping:
Even though I was shocked by the label of “incurable schizophrenic” Dr.
X put on me, at his office, that makes me feel completely hopeless, I am
not this label, I am more than what people think about me and I deeply
and completely love and accept myself.
While we were tapping I installed some reframing about how I was one
with her, no hierarchy between us, how we were together and no label
separating us.
The result was important for the rest of the treatment: she trusted that
she was not alone and that I was assuming a strong, deep, and personal
commitment with her. Differently from other professionals she had seen
before, I was not just using a technique or medications or my
professional skills. Sometimes when there is a lack of this commitment,
then technique, titles or medications become tools that are responsible
for the client’s feelings of isolation, inferiority and separation. When
this happens, these tools become inefficient.
She disclosed that when her daughter was born she was very upset with
some events and we tapped on them. The worst one (which launched her
first psychotic episode) was her husband’s imposition that his mother
should be the godmother of her daughter. Since they started dating, his
mother and his sisters disapproved of Jacqueline and were mean to her.
Jacqueline’s husband, Leo, didn’t allow any choice to Jacqueline. He
almost begged for this, crying and screaming. When Jacqueline went to
see her mother in law to invite her, her reaction was very negative. She
said: “I accept to be the godmother but I will not receive your family
in my house.” This was a traumatic event for Jacqueline.
She felt very unhappy, with no way out, and thus she had her first
psychotic attack. She undressed completely at a soccer stadium full of
people.
We tapped for this event, and many aspects showed up. We tapped for the
shame and guilt of not having control of her behavior. While she was
narrating the event I tapped on her. This is my preferred way of tapping
specific events. This one was a very traumatic event but finally her
husband agreed on her demand that his mother would not do the baptism of
their daughter.
Thus she was victorious in some way, but she paid a high price for this
“victory”: from this day on she carried the label of a sick person.
After two months her mother in law died suddenly and that gave
Jacqueline the illusion of having a mean power inside her, and that made
her still more guilty. In some way Jacqueline felt she had no control
over herself but from another point of view she was afraid of having
some extraordinary power.
While doing EFT….
Even though I lost control about my behavior that day in the stadium and
I am ashamed about it, I completely forgive myself. This was they way I
found at that time to validate my protest against my mother in law and
my husband demands.
Even though I did what I did at the stadium and she died two months
later, it is only a belief that I can control someone else’s time to
die. This is God’s power, not mine so I can be free of any
responsibility for other people’s life or death.
Jacqueline wanted to drive a car again. She felt ready to try it, after
clearing her psychotic attack and its consequences. So we tapped for the
fear of driving, first at my office, then in her car.
Even if I have fear of driving a car because I went out of control that
day at the stadium, and my mother in law died just after it, and my
husband said that I was not trustable anymore, I deeply and completely
accept myself.
Some aspects of her fear were: fear of losing control, fear of hitting
the car, fear of hitting some one on the streets, fear of hurting her
children if she hits the car, fear of killing someone.
We made a test. We went inside her car and tapped in the car for any
aspect, like “heart jumping too fast”, “I am not able to drive anymore”,
etc With me at her side, in the car, she drove the car by herself. After
a couple of minutes she was very calm, driving the car. Since that day
she is driving the car with no problem, with her children. Sco Paulo (my
home) has very dangerous and wild traffic. Many normal people don’t
drive cars here. But she does it now.
Schizophrenia is caused sometimes by double messages received mainly
during childhood. Since her birth we could find many situations where
double messages were received. Clearing all these double messages along
Jacqueline’s life, since her birth until now, it was essential to allow
her to see everything in a different way and to create a more integrated
identity.
Jacqueline was the first child. Her father (Italian origin) wanted only
a male child. When Jacqueline was born her mother felt in some way not
comfortable with the fact that she couldn’t give her husband a boy. At
the beginning of her life Jacqueline felt no holding, no sensation of
being desired. Eleven months after her birth her mother gave birth to a
boy who received all the attention of the parents. Jacqueline was most
of the time with a single aunt that had a strong passion for a catholic
priest at that time.
We tapped for all events and sensations Jacqueline could remember that
were related to this belief of not being wanted, of not deserving love,
of being guilty for not being the boy her parents were waiting for. The
strategy Jacqueline found was trying to persuade her father that she was
good enough like a boy would be, and to do so she became too close to
him and that made her mother very jealous and ambivalent towards her.
Even though I felt the cold eyes of my cold and felt alone in my little
bed, feeling I didn’t deserve love for not being a boy,….
Even if I still feel guilty for not filling my parents expectations,
when they said to me how important it was for them to have a boy as
their first child…
Even if I felt an ambivalence in my mother’s way of looking at me
because she wanted a boy instead of me and she was jealous of my love
for my father…
Investigating it more, I discovered that when Jacqueline had her crisis,
after the birth of her daughter, she was feeling guilty and not
deserving to have two healthy children, a boy and a girl. This was
connected with a specific and important event that we addressed in each
detail.
When she was 18 years old she was dating her future husband and she got
pregnant. As she was very religious and she wanted to become a mother
she didn’t want to make an abortion. But her husband, Leo, said that he
would stay with her only if she made the abortion.
She postponed it as much as she could. She felt under a big pressure.
She didn’t want to lose Leo and didn’t want to lose her child. She
talked with her parents and they agreed with the abortion. So she did
it. It was a very traumatic event for her. She felt guilty for the
abortion, felt enraged with Leo, who didn’t go with her to the clinic,
and felt very uncomfortable with her father. After the abortion he was
very critical to her. Their parents were supportive on one side, but on
the other they were very severe and full of deception.
We tapped for each aspect of this event: the blood she saw, the place
where she laid down, the light of the room, the questions the doctor
asked her, the ambivalent sight of her mother, the feeling of
abandonment because Leo was not there, the guilt of killing a 4 months
old fetus.
We discovered that her anorexia was connected with the blood she saw at
the abortion.
Even if the medication had controlled the anorexia, it was a good
release to understand and clear this event and the compulsion that it
triggered. From that day she started feeding herself on a more balanced
way and started losing the extra weight she had at the beginning of the
treatment.
She cried a lot when we were tapping for this event. Anger at herself,
anger at Leo, anger at her parents that could have said to her: “You may
have the child and we will help you”, anger at her father, who called
Leo to drink a whisky to calm down, sensation of having committed a
murder, etc
After some sessions working on this issue we tapped for forgiveness,
reframing that she was not alone on what she had done, she was just a
girl in love with Leo and in some way she did the abortion to save her
relationship with him.
Sometimes Jacqueline called me during the evening, crying, hopeless,
feeling that something was wrong with her, feeling that her husband
didn’t love her, although he always said the opposite. She never had an
abreaction, we just tapped on the phone and she calmed down.
We could see at that moment how the mother in law event triggered the
abortion trauma, guilt and anger. When her husband made this second
imposition to her: “My mother will baptise my daughter”, she fell apart
and collapsed. Since that day she started hallucinating and having
inappropriate behaviors. One manifestation of this behavior was a
passion for a catholic priest (like her dear aunt in the past), who held
her in a compassioned way at the church.
In my point of view, the main issue for Jacqueline was not being held
since the beginning of her life, and this fact was repeated many times,
maybe because the writings on her walls were like these: “I don’t worth
to be loved, I don’t deserve to be hold, there is something wrong with
me, I should be different to be accepted, I am inappropriate, I have
some strange powers that can harm people, etc”
I was suspecting, from some facts Jacqueline told me about, that her
husband was also sending double messages to her. On one side he said he
loved her, on the other side he was indifferent, quiet, isolated,
absent.
I worked with the couple for three sessions and my impression was
confirmed. Leo was very polite but was always concerned with Jacqueline
in a very distant and professional way, asking me if she shouldn’t start
with the medication again.
During the year we worked together Jacqueline had some more depressive
moments. Sometimes she was very accelerated, talking and talking,
reading the Bible compulsively, going to the church and speaking in a
non-spontaneous and hearty way. I supported her not taking the
medication in all these moments.
Beyond EFT we did some yoga therapy, grounding and breathing exercises
to calm her and connected with the here and now, feeling her body
sensations and trusting them. Being touched by me in a very tender way
very important for her to feel grounded and accepted, bringing hope back
to her life. These procedures were enough to stop any process of losing
control or wish to die.
What was interesting is that when we cleared all aspects of the guilt of
the abortion, including the guilt of having healthy children and the
guilt of being alive (she used to talk of suicide as a self punishment),
on the same week her anxiety stopped and her voice became more calm and
she stopped smoking.
As she was more awake and present to her family she started trying to be
closer to her husband but he was always very distant, even repeating
mechanically that he loved her.
We tapped: “Even though I feel like I am crazy with the double messages
he sent to me yesterday, and maybe since I was 18 years old, I hold
myself, I deeply accept myself, and I choose not to believe that I am
crazy. Maybe there is something wrong with him..”
She asked him to go to therapy but he didn’t go.
After some time, as she was more centered and not feeling crazy, she
started realizing how strange was her husband’s behavior. It was not
difficult for her to find out that he was having an affair. Coldly, he
agreed and told her he didn’t love her anymore.
Now they are in a divorce process. As a catholic this is very
complicated to her. But she has the serenity to face this fate. She
brought her children to therapy, she went to a lawyer and asked for the
rights of her children. Leo came to me and confessed that since she was
18 he didn’t love her. He only married her because she made the abortion
and he felt committed with her and grateful to her. So maybe he has been
sending double messages for twenty years.
Jacqueline became very angry with him and with herself. We are now
tapping for her to accept reality as it showed up and finally be free of
these double messages that made her schizophrenic for 20 years. The good
part of it is the two wonderful children who are really special and are
doing the best they can to facilitate this difficult moment for
Jacqueline and Leo.
We have more work to do. The important thing is that Jacqueline is
working again in her profession. She could finally see that her husband
was away for many years, although physically present.
I think the most important piece of this therapy was the possibility she
opened for me to have a deep rapport with her, while tapping. She
started believing that she was a person, not a sickness, and as far as
this occurred, her own family started to legitimate her like a mother, a
professional and a complete human being. She felt self confidence to
re-start her professional life again. For 10 years her family and Leo’s
family considered Leo like the best husband, almost an angel, and
Jacqueline was the crazy one, the problem.
The whole system around her changed when she changed. The truth showed
up and she could see how she felt crazy also because her husband was
sending double messages since a long time, maybe during all their
marriage.
She is now living alone with her children. Leo left the house, and
Jacqueline is very grounded, determined, not even feeling a victim. She
said to me, “It’s time to turn the page: the page of my marriage, of my
labels, of my poor self esteem. I am ready to take care of me and my
children, and all I want is Leo to be happy, as far from me as
possible.”
Some months ago she gave me a long written testimony ( in Portuguese),
about her issues and her treatment, confirming some results I wrote
above. Her intention was to help other people who could profit from her
experience. One of these last days she completed the testimony verbally.
I quote this her words :
“For the first time in my life I feel peace in my heart. I have
difficulties with my son and with my husband but they don’t disturb my
peace. I want to live like a normal woman and like a helper, for this I
am praying and serving as a volunteer in a hospital.

For the first time people trust me again. I was elected for the
directory board of my club, and possibly I will be a candidate for a
public position in the near future. I am free from the obsession toward
the priest, I know it because I went to see him in the church and could
see him only like the priest he is. I don’t need smoking nor the voices
I used to listen to. I can remember the abortion without guilt. I
couldn’t have a child for myself at that moment. I feel free from the
double messages my husband used to send to me all the time, saying he
loved me but excluding me from his life and problems and pleasures. I
feel ready to take care of myself, and to take care of my children. I am
living each day, not anticipating the worse like I used to. The pressure
I felt in my heart is gone. I think I tried to protecte my husband by
accepting the double message without any protest, putting the guilt on
myself. I feel healthy as anyone in this life even if I need therapy for
some more time.”

I wrote in the computer while she was speaking. Her voice was soft.
During her worse days her voice was too acute and full of irony and
arrogance. This day her eyes were tender, her voice was tender, her
posture was elegant, her energy was kind and balanced.

Concluding I think that what was decisive was EFT plus the holding she
felt because I could accept, without any judgment, her passion and
fantasies toward the priest, her wish to die, and her fear of getting
crazy, and her deep pain, out of any category or classification that
could separate us.
Sonia Novinsky

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