Category Archives: Mad Radio

Not thinking right and I know it…

No poetry this post, sorry. Tune in next time, soon.

Yes I take drugs.

I take 4 different psych meds, not high dosages and I’m unable to notice any annoying side-effects. There have been several times in my mentally-ill life that I have been med free and doing fine, thank-you. The last few years I have needed, or seemed to need, some chemical support to stay operational. This doesn’t count the insulins I need to survive type 1 diabetes.

Late last week I got 2 calls in one day telling me I was “not selected” for jobs I interviewed for, both were jobs I’m very well qualified for, thought I did great in both interviews. The clincher on one was when they said they found someone who was more experienced in a particular area. It just so happens that, no ego here, I am probably the very most experienced and qualified in this specific area in the state. Made me feel like a loser. Made me feel paranoid about my mental-health rep and the possibility that people I had listed as references who are so very supportive to my face may actually be undermining my job search. “Objection!”…” But Judge, this goes directly to the subjects state of mind!”… “Okay then, I’ll allow it…”

A few days back (…4?…5?) I ran out of 2 of the most important psych meds. One helps me sleep (among other things) and the other is an SSRI. Now, I know all about abrupt SSRI withdrawal, personal and observational data gained at some difficulty. But, thing is, I have been broke. Can’t afford even the co-pays. Also, 2 days back I ran out of one of my insulins; again, can’t have what ya can’t pay for. My sleep has been very odd- it;s like I’m sleeping but can’t tell if I’m awake or dreaming. I sweat very heavily (yeah,too much info, sorry).

I have been getting more and more “weird”. I have thoughts and perceptions I know aren’t right. It has become harder to carry on even simple conversations with family members because I have to keep editing myself, trying not to say something too strange or something that might worry my wife or younger son (who still lives at home).

I haven’t brought my lack of meds up at all. I know we don’t have money. I have feared that my wife would call my mother or some other family member. I am so sick of begging, being dependent. It reinforces my feeling of being a pathetic loser. BTW- I know that this is also probably an example of not thinking right.

I haven’t called anyone who might be helpful- well, I called someone but they weren’t answering and so I stopped trying. I have become more and more paranoid that people will find out how worthless, pathetic and crazy I am. I have become increasingly afraid to talk to anyone.

Friday, 4 days ago?, I was already losing it but the day went to hell way beyond what I could handle. But I tried to handle it anyway. I did everything wrong, at least in the eyes of the people around me, especially my wife. Her car broke down (I’m no mechanic) and she took my car to work, swapping it back later in the day. The bank account was overdrawn and I ended up using the last of my unemployment money to get the balance back to zero.

Thing is: I was so shocked to find the account overdrawn. I knew exactly what was in the account and the day before I talked to my wife about not using the “apparent” balance showing on the account- it was just ghost money that would soon be gone. She made 2 relatively small payments- for gas and $20 cash (perfectly legit uses for money)- and added to the two $35 overdraft fees put us a hundred bucks in the hole. I saw in our future a black hole of overdraft fees that would continue to pile up until we couldn’t do anything about it. (This is not an unreasonable fear in itself- it’s happened before.)

Comedy break:

During the day she wrote another hundred dollars in checks to cover important medical co-pays she needed to get her insurance set up with a new provider. I talked our son into getting a $100 cash advance to cover the upcoming overdraft.

She got a ride home from work after suggesting that we get a “drink” on the way when I picked her up.

She got home from a co-worker. She indicated she still wanted to go get a drink.

We’re still on Friday. Instead of taking her to get a drink I took my son to his bank to get cash and then went to our bank to deposit cash. I went home. My wife was half asleep but I could tell she was mad. Why had I prioritized going to the bank (before it closed)? Why had I spent all our cash covering the bank overdraft?

So, I made it worse. I went out and found a mechanic neighbor who said they would help me diagnose the problem with her car. We found that things were much worse than I could fix on my own (or without money to invest in a real mechanic).

By the time I got back I knew I was in the doghouse and in the very back of said animal abode.

The next day she was still mad. I was beginning to really lose it. My brain was definitely not functioning well. Being incapable of reasonable conversation, made the relationship problems worse. I was even more afraid to tell that I had no meds and was experiencing alternate reality that was more and more scary.

I didn’t go to Friends Meeting- I was too agoraphobic at this point. I didn’t wantto have to talk to anyone if possible.

Comedy break:

The saga continues: So, over the course of the weekend I got weirder and weirder. Tried to stay inconspicuous. Not a complete success.

This morning: cried from 8 am to 10. Then walked around the neighborhood trying to find cans and bottles that I could take to Safeway and get some oatmeal and toilet paper (I judged these to be the most important things I could get). Cried from 12 to 1pm, until got a call from my wife at work. She asked me what was wrong. “nothing”. She said she was going to call my mother and get money to buy meds. I begged her not to do this. She hung up. I cried some more. She called back and said that she would go to the pharmacy and write hot checks to cover the meds. I sobbed until she arrived with a bag of drugs. I had shit in my head that I will not share with you, kind strangers, but just know that it was very bad.

Now I have taken pills, even ones I don’t usually take (some sedatives). My wife has some difficulty being around me when I’m “not right”. I have stayed mostly in our room and either just kept my eyes closed or read a stupid crime novel.

Why did all this happen? How come I let it get so far? Why can’t I call on people when I need help? (Wait: I can answer that last one- Most people don’t want to hear from you when you are “not right”. They want to have you feel better, right now. When you don’t get better right away they get nervous, impatient and can’t wait to hang up. Also, I am not good on the phone. I can’t usually talk comfortably to people I can’t see.)

Comedy break:

Madness, feeling like you can’t think right, feeling pathetic/ worthless and suicidal- these are not good ways to be. I don’t go out of my way to feel like this. In fact I have put an extraordinary amount of time and thought into making sure I don’t go there. But sometimes, the best laid plans….

I know I’m not alone. I spend a lot of time with people who walk the edge. I know that slipping is common and that isolating is a very common response to the slippery slope.

Later this week I will be teaching 3rd through 5th graders at a conference in Corvallis, as part of a children’s program designed to allow parents to attend and give children a pint-sized dose of the conference topic: That of God in Everyone (It’s a Quaker conference- North Pacific Yearly Meeting of the Religious Society of Friends.

The main result of this engagement that relates to issues at hand is that I will have to postpone the monthly radio show till next week- a full week after the Full Moon. So:

Mad Liberation by Moonlight is postponed until Friday 7/25, I think.

More pictures:

Ouch, Spidey, that lookedlike it hurt…

What is it with me and comic book characters today?

BTW- this following false Advertisement was done by a woman who is “sick of the pink, flowery, sound of music” shtick that goes with feminine hygiene products.

Good luck, stay safe, do as I say, not as I do, please be as happy as the circumstances will allow, if not more so. Until next time…(soon)…

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Filed under animated gif, animation, comedy relief, CS/X movement, Mad Radio, Mental health recovery, personal story, pictures, silly

If you aren’t Mad you aren’t paying attention

News from MindFreedom and the Bend Weekly News

A State of Oregon study says that Oregonians in the mental health
system die earlier than the general public.

Bend Weekly News in Bend, Oregon, USA covered this news in the below
story, which includes a link so you can download the State of Oregon
study, “Measuring Premature Mortality among Oregonians,” published 10
June 2008.

~~~~~~~~~~~

http://www.bendweekly.com/Statewide-News/15699.html

Report: One-third of mentally ill Oregonians die before 50

Jun 13, 2008 by Bend_Weekly_News_Sources

Oregonians with serious mental illness are dying years earlier than
their neighbors in the general population, and a grassroots health
movement is under way to reverse this trend.

The Oregon Department of Human Services Addictions and Mental Health
Division (AMH) has teamed with consumers of mental health services
and their families, health care professionals and others to implement
a statewide wellness initiative aimed at improving mental and
physical health and longevity.

Death comes before age 50 for one third of those treated for mental
health problems, according to results of a seven-year AMH mortality
study. A staggering 89 percent of people treated for both mental
illness and substance abuse die before age 50. The average lifespan
of someone who is dually diagnosed is 45.1 years, which equates to an
average 34.5 years of potential life lost.

The recent study, titled “Measuring Premature Mortality among
Oregonians,” compared the death records of persons who received
public substance abuse and/or mental health treatment with the
general population.

The early death toll among this segment of Oregonians falls in line
with similar results from national and state studies. More
importantly, it brings into focus what many individuals with mental
illness
already knew; by taking charge of their health, habits and
lifestyle they can add years – and quality – to their lives, said Bob
Nikkel, DHS assistant director for addictions and mental health.

“National research and this study make it clear that persons being
treated for substance abuse and mental health problems have many
risks that may bring on early death,” said Nikkel. “Our most critical
imperative is to help individuals with mental illness live better and
longer lives.

“Mental health and substance abuse is an important quality of life
issue for Oregonians,” he continued. “Dying prematurely not only
destroys human potential, but it has an economic impact as well.”

The AMH study showed substance abuse and mental health clients have
higher risks of death associated with suicide, homicide and
unintended injuries. In addition, they are economically disadvantaged
and vulnerable to many diseases that cause death. For example,
antipsychotic medications used to treat someone with mental illness
are known to elevate the chance of dying from cardiac arrest; others
may lead to diabetes.

The mortality study is available on the DHS Web site at:

http://www.oregon.gov/DHS/addiction/publications/
msur_pre_mort_6_2008.pdf

Nikkel said a DHS/AMH wellness committee is working to improve the
health and longevity of people with mental illness by drawing on
scientific research, literature and successful practices by user
groups. Here are some of the committee’s guiding principles:

*** We must treat and support the whole person;

*** Care coordination and wellness screening are essential;

*** Access to a range of health care options and basic health care
must be afforded to all Oregonians;

*** Early intervention and prevention across the lifespan saves
lives, makes a difference in years of productive life lost, and
improves quality of life;

*** Medication management and empowerment equips individuals with the
tools and strength to ask questions and work with treatment providers
to find healthier and effective ways to support recovery and
wellness; and

*** Disparities in health care coverage and access to service must be
overcome, along with finding culturally appropriate treatment programs.

Committee members are seeking funding for grassroots-level programs
that encourage education and lifestyle changes and for peer-to-peer
support services.

For more information visit the DHS wellness Web site at:

http://www.oregon.gov/DHS/mentalhealth/index.shtml

On a different note-

Talking with my guests at KBOO radio last night we got into a discussion of stories we all had from psychiatric hospitals, some funny, some not and different experiences we had with mental health providers. I think Ann had the idea that we need to have a “secret shopper” project; people could go to various agencies and then provide reviews of the services, respect and treatment they receive. We could then publicize the information to produce a guide that would be useful to folks. A related idea was that we should collect current information regarding services and treatment at hospital psych wards. On the air we got into a discussion about the relative merits of Portland area acute care facilities. Conclusions? We agreed that, at least before their remodel, Adventist was the worst place to stay but had the best food. Our choice for best local facility (as if anyone ever has a choice) was Providence NE. We also agreed that the showers at St Vincent’s leak and flood the rooms.

We had a great time on the program and gave away tickets to the National Air Guitar Championships being held at Dante’s in downtown Portland. The winner was chosen from among callers on the basis of how many diagnoses they had been given. A good time was had by all.

New Music- added last night on the Music Page

Check it out.

Pictures friom my son’s blog- Better Bees than Bears

He’s drawing pictures on the sidewalks of San Francisco.

Ready to breathe

The first tadpole crawled out of the water last night at about 11 pm. Won’t be long before they all head off into the world. Sniff.

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Filed under CS/X movement, Free Music, Frogs, Mad Radio, Mental health recovery, mindfreedom news, mp3, new music, pictures

Wednesday, June 18th, 2008

Second Warning!

Mad LiberationBy MoonLight

KBOO Radio 90.7 FM
1- 2 a.m. Late Friday night
(yes, I know that it is technically Saturday morning- relax, it’s just a radio show)
June 20th, 2008

Dedicated to Everyone
who has ever been given a psychiatric label, to anyone who experiences mental health challenges and to anybody who has the misfortune (or good fortune) of being awake at that hour.

You can participate!

Call in at (503) 231-8187
Please call in! Set your alarm!

Friday nights from 1 am to 2 am usually following the full-moon, will be a segment on KBOO radio (90.7 on your fm dial, to the left of NPR), also streamed on the internet on their website, http://www.kboo.fm/index.php will be time for of Mad Lib by Moonlight. The program is part of the usual Friday night show, The Outside World.

Flier for printing- post it at your place of bidness!

mlbm62008

Check out new music on the music page-

I added 2 songs today.

Pictures

I’m sure you know people like this:

Dignity-

Street sign in Hong Kong-

Graffiti-

The cat is the hat-

New tadpole shots!

They have front legs!!

I’m also seeing signs that some of the tadpoles are becoming newts- the barest expression of gills; I can’t capture on camera yet. Soon

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Filed under CS/X movement, Frogs, Mad Radio, Mental health recovery, new music, pictures, silly