Tag Archives: Mental health recovery

Various and Sundry

I would have to say that the last couple weeks have not been the best I’ve had. They have probably been the most unpleasant by far for quite a while. It’s not all bad, even so. It’s just that much of the time lately I am confronted with visceral, ugly feelings in myself. I want to push them away but also know they are here to reach me something(s).

One thing about pain, especially the animal level of pain, even emotional, it presents a kind of clarity that cuts through other things that would otherwise seem important. It doesn’t necessarily provide a clear view- it can obscure the the things that you most need to understand. I see the image of Manjushri- the Buddha depicted with a sword, who cuts away delusion. The problem is that if you cling to the delusion, you feel like you are dying.

I cling and let go alternately, back and forth, sometimes see some balance as it swings by.

I am finding challenges in both my personal life and my work that seem to work together to make me feel confused. So, what is there to do with hard feelings? With gut level pain? With uncertainty?

Here is my image that I am cultivating. Instead of pushing away the thing that hurts or causes stress, I try to touch it- feel it in my body and heart, and hold it up to the light. By holding it up to the light I mean that I try to see it’s origins, purpose, meaning. Much of the time I find that it has at it’s roots a kind of lie- or at least a clinging to that which is untrue. It may represent the dying of an act of grasping that has no basis in reality. At the same time, I try to see it with some tenderness- grasping and clinging to things is human and a basis for our grief. Knowing this doesn’t make it less painful. Tenderness may even make it more painful- if I’m really open to the experience.

Then, after holding it tenderly in the light, I try to put it down gently. And let go.

It’s a process that happens many times through my day. It is like the directions on the shampoo bottle- Rinse, repeat. It often provides a few moments of near-joy (I haven’t mastered it enough to get that last part very well but I am inching toward it).

I’m working on a new song. I haven’t written a song in years. I don’t know much about it yet but I feel it coming.

Today my work was satisfying mostly but ended on an overwhelmed note. Then I went to an Interactive Theater workshop (From the Inside Out/ Theater for all). I went because I knew I’d benefit from being around people. Part of me was reluctant- like it was maybe some bad tasting medicine. Like I’m a social misfit and I need to get out and be around people as some kind of treatment. Two odd things happened (or three).

First I got a call from the workshop organizer asking me to pick up someone who couldn’t get to the workshop by herself. The address where she lives is far on the other side of being on my way. I was told that I could say no; I was told that if I didn’t pick her up she would miss the workshop and it was important to her. I agreed. It meant that I had to leave an hour earlier than I would have otherwise. It meant that I would not see my wife when she got home. I went.

About halfway there I got another call saying that I didn’t have to pick her up after all. That someone who lived closer to her could do it. I was already well on my way and I went ahead- driving to the address I was given. When I got there it was familiar. Then I realized that the person I was picking up was someone who I had met and worked with years ago. Someone I had helped. I felt a very positive sense of synchronicity/ congruence talking with her on the way.

At the workshop I ran into another person who I had met at previous events. It’s someone who every time I see him I find out more stuff that we have in common. His name is Tom Widdick and he is sort of famous in the mental health consumer movement as one of the founders of possibly the first modern psychiatric rights group- the Insane Liberation Front, back in 1969 or so. I just met him a few months back but I have since found that we went to the same high school (one that no longer exists), used to sell the same underground newspaper, both have diabetes, both have mental problems, know a bunch of the same people. Tonight I learned that he attends the Bridge City Friends Meeting- a sister community to the Multnomah Monthly Meeting of which I am a member. Wild. “Am I going to the family retreat this month?” he asked. “I’m not sure we can afford to go,” I said.

Oh, yes, this Friday night is MLBM- Mad Liberation by Moonlight. 1 a.m. on KBOO 90.7 or streamed at KBOO.org

All that aside- my latest favorite Rumi poem (I’ve left out the last lines because I am too tired to type it all):

No Room for Form

On the night when you cross the street

from your shop and your house

to the cemetery,

you’ll hear me hailing you from inside

the open grave, and you’ll realize

how we’ve always been together.

I am the clear consciousness-core

of your being, the same in

ecstasy as in self-hating fatigue.

That night, when you escape the fear of snakebite

and all irritation with ants, you’ll hear

my familiar voice, see the candle being lit,

smell the incense, the suprise meal fixed

by the lover inside all your other lovers.

This heart tumult is my signal

to you igniting in the tomb.

So don’t fuss about the shroud

and the graveyard road dust.

Those get ripped open and washed away

in the music of our final meeting.

And don’t look for me in a human shape. I am inside your looking. No room

for form with love this strong.

bodymindspirit.gif

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PSA from Mind Freedom

WHAT:  Live interview on KBOO-FM radio about an Oregon state-wide 
coalition of Mental Health Consumer & Psychiatric Survivor groups.

WHO:  David Oaks, Director, MindFreedom will be interviewed by KBOO-
FM radio journalist Marliese Franklin.

WHEN:  This Wed., 13 February 2008, at 10:30 am PST

WHERE: KBOO-FM Radio

HOW:  Listen in Portland 90.7 fm; Corvallis 100.7 fm; Columbia Gorge 
91.9 fm

        *or* listen anywhere live online at http://www.kboo.fm

WHY:  Support the state-wide voice of people on receiving end of 
mental health care in Oregon!

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The Washington Post addresses forced treatment

Proposals to Force More Involuntary Treatment Stir Debate

By Tom Jackman

Washington Post Staff Writer

Thursday, February 7, 2008; B04

http://www.washingtonpost.com/wp-dyn/content/article/2008/02/06/
AR2008020604102_pf.html

In the debate over Virginia’s mental health system, they’re called
“consumers.” Some of them call themselves survivors.

They are mentally ill people who have been through the system and
didn’t like it. They criticize the humiliation of being handcuffed,
the forced administration of antipsychotic drugs or the debilitating
side effects of the drugs. And they don’t think the government is
best suited to choose their treatment.

Rather than forcing more people into involuntary treatment by
lowering the legal criteria or enforcing outpatient treatment —
approaches that Virginia’s General Assembly is considering —
consumers and their supporters say they think the money for those
approaches would be better spent on counseling, housing and jobs for
the majority of the mentally ill, who aren’t dangerous or helpless.

Since the Virginia Tech shootings in April, which were committed by a
mentally ill student who did not receive mandated treatment, many
mental health advocates have called for a lower standard for
involuntary treatment and easier access to patient records for
determining a person’s treatment. Under Virginia laws, some of the
most stringent in the country, a mentally ill person can be committed
only if he poses an “imminent danger to self or others” or
demonstrates an “inability to care for” himself.

But a group of consumers is fighting back. They say they think that
changing the imminent-danger standard is a bad idea and that opening
patient records will discourage people from seeking treatment.

As the debate heats up in Richmond over how to fix Virginia’s mental
health system, consumers are lobbying legislators and testifying at
hearings. A consumers’ rally outside the state Capitol last week
attracted more than 650 supporters and a number of legislators, said
organizer David Mangano of Chesterfield County.

“The problem has much more to do with the system’s failures, not with
the language of the law,” said Mangano, a consumer and family
advocate for Chesterfield Mental Health Support Services. “The actual
number of people who are great safety risks and great risk to the
community are very small compared to the number who need services. If
you start changing practices, changing the code, to try to catch
those people [who are risks], what really have you done with all the
people who don’t belong there and have really good reasons not to
comply with treatment?”

Consumers say that providing counseling, peer support, housing and
jobs should take precedence over forced treatment. Michael Allen, a
lawyer formerly with the Bazelon Center for Mental Health Law in
Washington, said: “The problem in Virginia is not [revising] what
standard is used to treat people against their will. The question is,
do we make mental health services available in a timely fashion? Do
we make it comprehensive and holistic or wait until they fall to the
bottom?”

Some consumers have had positive experiences with treatment and are
also fighting to revise Virginia’s system. Jonathan Stanley said that
in his 20s, he spent three years in a cycle of increasingly psychotic
episodes, ending with an incident in which he stood naked in a New
York City deli and was forcibly hospitalized for seven weeks.

He said doctors determined the proper medication for him. He finished
college and law school, and now works for the Treatment Advocacy
Center in Arlington County. He is lobbying for change in Richmond,
including modifying the existing imminent-danger criteria, which he
called “the most restrictive in the country.”

Stanley is seeking support for more mandatory outpatient treatment,
modeled after New York’s Kendra’s Law. He said that 80 percent of
people emerging from such programs “say their coerced treatment has
helped them get and stay well. Those are the consumer voices that I
listen to the most.”

Most mentally ill people are functional and want to make their own
choices but need help, many consumers say.

Yaakob Hakohane of Arlington had been through decades of legal and
mental health experiences. In the early 1990s, he helped create a
group to advocate on behalf of the mentally ill. But even he said he
was amazed by how easily he was involuntarily committed to a mental
hospital last summer.

Hakohane, who suffered a brain injury as a teenager, said he fell and
hit his head on a sidewalk one afternoon in July in Crystal City. He
became disoriented and said police and paramedics who responded “were
kicking and poking me,” so he decided not to talk to them.

Hakohane was also suspicious of the people who treated him in the
emergency room. He remained silent and was temporarily detained. When
he went to a civil commitment hearing two days later, despite the
testimony of two people who said he was perfectly rational, he was
ordered into treatment for up to six months.

“It seems obvious from this experience [that] it’s not hard to commit
people,” said his friend Diane Engster, who attended the hearing.

“It’s easy,” Hakohane said. “Anybody can commit anybody else.” He
said he cooperated with his doctors and was released in a week.

Consumers such as Engster, who founded the Northern Virginia Mental
Health Consumers Association with Hakohane, are also troubled by
attempts to open up patients’ records. Special justices who decide
whether to commit a person typically do not have access to
psychiatric histories, and legislation is pending to allow that.

Alison Hymes, a Charlottesville consumer advocate who served on a
state Supreme Court task force on mental health law reform, writes a
blog about such issues. She wrote that if the state requires mental
health providers to turn over patient records, “mental health
practice in this state will never be the same. Patients/clients/
consumers will not be able to trust their secret thoughts and
feelings with their clinicians. Clinicians will not be able to abide
by the ethical standards of their professions. People will not seek
help and those who are already receiving therapy, such as myself,
will quit.”

Virginia is going through an unprecedented examination of its mental
health system after the slayings at Virginia Tech. This is one in an
occasional series of reports about problems in the system.

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Not my best week

I haven’t much to say. What I do have to say, I don’t want to talk about it.

So, here arte some links to things I’ve been reading:

Two articles about trauma from the National Empowerment Center

http://www.power2u.org/articles/trauma/coping-tragedy.html

http://www.power2u.org/articles/trauma/ment_cope.html

And a link to Car;l Sandburg’s Rootabaga Stories

http://www.josephperry.net/rootabaga/

Have a nice weekend. Here’s a cute kitty (thanks, Nyomi):

kitty.jpg

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Mad news and views

This reprinted from Ron Unger’s blog today:

Posted by Ron Unger on January 31st, 2008

Below is the first paragraph of an exerpt from a recent book review, followed by some of my thoughts about the problems caused by looking at experiences as the result of an “illness” rather than as the workings of a mind that could eventually be better understood and worked with until they become something positive: Book Review Essay: An exploration of manic depression. Bipolar Expeditions: Mania and Depression in American Culture By Emily Martin Princeton University Press, 2007. Reviewer: Sander L Gilman The Lancet 2008; 371:293-294Emily Martin is “mad”—she uses this term in the preface of her book to
provide a context for her account of bipolar disorder/manic depression
in the USA today. Clinically diagnosed as bipolar, in this serious and
engaging book she repeatedly documents the symptoms of her illness.
Martin has hallucinations, including that of the “sinister figure, a
cold gray gargoyle, perched tenaciously on my shoulder, looking at
what I was writing…and muttering a devastatingly negative commentary”,
which haunted the very act of her writing. What that “cold gray
gargoyle” is reading over her shoulder is her study of “mania…a new
continent with a distant frontier, whose receding horizon invites
exploration and development”.
My comments:

My comments:To me, “illness” is an inadequate metaphor to describe what goes on with depression and mania and creativity etc. It just seems inadequate to describe say the “cold gray gargoyle” as being sourced in an “illness” – mood and imagination involve so much more than that. Instead, I tend to see it as about self regulation – creativity involves going out of control to some extent but those who are successful with it learn how to make their way around in that world, to make their way back if they get “too far out” in any particular direction. So if they create a cold gray gargoyle, they also find their way to a counter-figure or some resource that allows them to deal with it, and overall they eventually end up enriched instead of oppressed. Rather than let their creativity ruin their life as some do in mania, they rein it in when necessary, but also let it take them to the edge or even a bit over at times so they find new worlds.
The sad thing about teaching people to think of themselves as having “bipolar disorder” or other such things is that they learn to think of the less ruly parts of their mind as an illness, a defect, rather than as a resource which they could possibly learn to use. We seem to have no notion within psychiatry about the development of wisdom, so the idea that one could learn to have better judgment about when to take those “manic” risks doesn’t occur to us. Nevertheless, despite official denials that any such thing is possible, it isn’t that hard to find people who have been told they were “bipolar” (or schizophrenic, or schizoaffective) decades ago and yet they are doing fine now, without medications. (I know, ” but they still could relapse in the future.” Hey, even many of us who never had a manic episode might still have one in the future, but the existence of this possibility does not justify diagnosis of an “illness.”)

From MindFreedom International:

Save the Date!

Free Panel and Public Forum in Portland, Oregon, USA on:

Forming a New State-Wide Coalition in OREGON
of Mental Health Consumers and Psychiatric Survivors!

All are welcome and invited!

~~~~~~~~~~~~

DATE:

Friday, 15 February 2008

~~~~~~~~~~~~

TIME:

3:00 pm to 4:30 pm

~~~~~~~~~~~~

WHERE:

Main Public Meeting Room
Multnomah County Central Library
801 S.W. 10th Avenue
Portland, Oregon, USA

~~~~~~~~~~~~

WHO:

A panel will speak briefly about how mental health consumer/
psychiatric survivor groups can work together in Oregon and
throughout the USA.

Then we hear from YOU in a moderated public forum — your questions,
comments, experiences, input!

PANELISTS:

* DAN FISHER, MD, PhD. of Massachusetts.

After a diagnosis of schizophrenia and psychiatric
institutionalization, Dan became a psychiatrist. He now directs the
National Empowerment in Center in Massachusetts which he co-founded
in 1992. Dan helped launch The National Coalition of Mental Health
Consumer
Survivor Organizations. About half of USA states now have
state-wide organizations that belong to this new coalition.

* DAVID OAKS of Eugene, Oregon

David directs MindFreedom International which unites 100 grassroots
groups in an independent coalition to win human rights and
alternatives in the mental health system. David is a psychiatric
survivor.

* ROLLIN SHELTON is a long-time leader for transformation in the
mental health system who has been diagnosed with a psychiatric
disability. Rollin is director of the nonprofit organization Peer
LiNC Oregon (formerly OCTA)/MHAO based at Portland State University’s
Regional Research Institute.

* AMY ZULICH of Multnomah County, Oregon

Amy develops self-directed supports and planning for mental health
consumers
. She works as a mental health peer advocate and program
coordinator for Empowerment Initiatives (EI). EI currently serves 25
people annually with brokerage-style self-directed supports. EI is in
the process of helping people with mental health labels transfer out
of group homes and foster care homes into more independent living.
Amy identifies herself as “a person who has experienced psychiatric
labels.”

* YOU! All are invited! Mental health consumers, psychiatric
survivors, mental health workers, family members, advocates and
concerned members of the public. Your questions, feedback, concerns,
ideas are welcome.

~~~~~~~~~~~~

WHY:

It is time for mental health consumers and psychiatric survivors to
unite for a strong state-wide voice!

It is time to support the principles of empowerment, self-
determination, recovery, human rights and a full range of
alternatives and choices for our well being throughout Oregon!

It is time for all who care about these important issues to support
this voice!

One year ago a number of mental health consumer and psychiatric
survivor groups supported the adoption of a mission statement and
tenets for an Oregon Consumer/Survivor Coalition (OCSC).

A dozen groups have joined, OCSC is now incorporated, and draft
bylaws are being prepared, all without funding from the State of Oregon.

This year it is time to launch OCSC. Let us hear your ideas,
enthusiasm, suggestions, feedback and questions. Bring a friend!

~~~~~~~~~~~~

MORE INFO:

Free. Wheelchair accessible. Free refreshments.

For more information about OCSC contact Mark Fisher at mfisher88@msn.com

See web folder:

http://www.mindfreedom.org/as/act/us/or/ocsc

To receive updates about OCSC please join this free, private, one-
way, no-spam e-mail announcement list:

http://www.intenex.net/lists/listinfo/ocsc-news

For more information about the 15 February 2008 meeting contact the
MindFreedom Oregon office at (541) 345-9106 or lane@mindfreedom.org.

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Oregon State Hospital Caught with it’s Pants Down

SALEM, Ore. — The U.S. Department of Justice has found numerous civil rights violations of patients at the Oregon State Hospital. In a report released Wednesday, federal investigators listed inadequate conditions and practices at the mental hospital ranging from life-threatening use of restraints to widespread patient-on-patient assault. Federal law entitles patients to certain standards of care. State health officials say many improvements have been made since the investigation took place in 2006, but acknowledged problems still exist. “The conditions reported on … are completely unacceptable,” said Dr. Bruce Goldberg, director of Oregon’s Department of Human Services. “It’s unacceptable as a state and its unacceptable for us as a state hospital for the health and well-being of our patients.”

The Oregon State Hospital is the state’s primary psychiatric facility for adults, which has a main hospital in Salem and other satellite facilities. Officials found violations in Salem and at its smaller Portland campus, which is used for psychiatric rehabilitation. Some of the cases highlighted in the 48-page report include:

  • Nearly 400 cases of patient-against-patient assault over one year.
  • Infection control issues such mice in rooms, deaths from pneumonia and outbreaks of norovirus and scabies.
  • Patients injuring themselves, including multiple suicide attempts, while under staff observation.
  • Failure to follow common standards of care: A patient with a disorder that causes excessive thirst was left at the water fountain and gained 13 pounds in water weight in one day.
  • Patients being put in seclusion indefinitely: One patient had been in seclusion for a year with no other treatment when investigators arrived. Other issues included improper medication, failure to diagnose mental health conditions, improper use of restraints, nurses working excessive overtime and patients waiting for discharge for more than a year after being approved. The report sets out recommended changes but does not set timelines to complete them. It is the latest in a series of critical looks at the hospital. Multiple state-commissioned reports found major health and safety dangers there, primarily from the crumbling century-old facility in Salem. It was the setting for the 1975 film “One Flew Over the Cuckoo’s Nest.” The Oregon Legislature last year authorized $458 million to build two new state-operated hospitals by 2013: a 620-bed hospital in Salem and 360-bed facility in Junction City. The hospital also hired a new chief medical officer and additional staff. “It’s not the same hospital today that it was in 2006,” Goldberg said. A spokeswoman for Gov. Ted Kulongoski said the governor takes the findings seriously, but is pleased with progress made since the 2006 investigation. Others were more dismayed by the report. “It’s the worst report I’ve read in my entire life,” said Senate President Peter Courtney, D-Salem. “Every word was something else that was terrible. No standards, no progress … it goes on and on.” Courtney said he will create a a legislative oversight committee to monitor progress toward compliance with the Department of Justice’s recommendations. “In my opinion, this is the number one issue for Oregonians today,” he said. The National Alliance on Mental Illness of Oregon said it wants a comprehensive review of the entire mental health system so the 2009 Legislature will know how to respond. The Department of Human Services says it will request additional positions from the to improve patient care and safety. “This is a symptom of years of neglect to our entire mental health system,” Goldberg said.
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    Post MLK Day post

     peace.jpg

    This in from David Oaks:

    Repeatedly, in the last two decades of his life, Rev. King said in 
    speeches and essays that he was proud to be “psychologically 
    maladjusted” to oppression, war and poverty.
    MLK said the “salvation of the world lies in the hands of the 
    maladjusted!”
    More than 10 times MLK said the world desperately needed a new 
    organization, the International Association for the Advancement of 
    Creative Maladjustment (IAACM)!
    As far we know, the IAACM never officially formed. Time Magazine 
    called it a “half joke.”

    But last year, in 2007, MindFreedom International helped launch the 
    IAACM at its international conference as part of the “Mad Pride” 
    movement that celebrates the right to be nonviolently different, odd, 
    crazy, nuts, strange, weird, or whatever term society would like to 
    toss our way.

    Who else could have intentionally and consciously formed the IAACM, 
    in reality, other than psychiatric survivors?

    The Mad Pride movement asks you a simple question:

    By MLK’s 80th birthday in 2009, what action will you take to show 
    your “creative maladjustment”?

    For a decade “Mad Pride” celebrates each and every human being’s 
    creative uniqueness and right to be nonviolently different, including 
    we people who have survived the psychiatric system. Like Gay Pride, 
    Mad Pride events have included parades, theater, “bed pushes,” 
    concerts and more.

    From the Inside Out: 

    In Portland we are fortunate to have a group called “From the Inside Out”. Led by Cathy Clemens, FTIO provides workshops and produces community events using interactive theater to explore issues and solutions related to mental health and it’s accompanying stigmatization. Based on the techniques of Theater of the Oppressed as developed by Augusto Boal, Interactive Theater participants create small plays that engage the audience in creatively changing the outcomes through active involvement with people who have mental health issues.

    I will try to keep FTIO events posted as they come up. The group is currently working on planning for the coming year.

    Reminder:

    Mad Liberation by Moonlight is coming this Friday night, 1:00 a.m. PST on KBOO radio, 90.7 on your FM dial (to the left of NPR). Also streamed live on KBOO.org- set your alarm. This time your radio really is talking to you.

    Martin Luther King on “Normalcy”:

    “The only normalcy that we will settle for is the normalcy that 
    recognizes the dignity and worth of all of God’s children.

    “The only normalcy that we will settle for is the normalcy that 
    allows judgment to run down like waters, and righteousness like a 
    mighty stream.

    “The only normalcy that we will settle for is the normalcy of 
    brotherhood, the normalcy of true peace, the normalcy of justice…

    “We must come to see that the end we seek is a society at peace with 
    itself, a society that can live with its conscience. And that will be 
    a day not of the white man, not of the black man. That will be the 
    day of [hu]man as [hu]man.”

    -from MLK’s 25 March 1965 speech in Montgomery, Ala.

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    Mostly Mad News

    I received this information from David Oaks at MindFreedom International:

    Hi MindFreedom Oregon TALK list,

    We got a call from an individual locked up in a Salem psychiatric
    facility who is pretty frustrated about getting any advocacy from
    anyone.

    I talked with her for a while, gave her some leads.

    If someone is inspired to network with her, she could use the call.
    She understands a volunteer doesn’t necessarily represent us, but
    sounds like she could use any support.

    Her name is JANIE.

    She is locked up in Salem Hospital in Oregon where she’s been locked
    up for a while.

    She was FORCIBLY DRUGGED.

    Her focus is mainly on the legal aspects of her case, to appeal, but
    she doesn’t have an attorney or money to hire her own so that can be
    tricky.

    If anyone reading this would want to get involved in helping this individual or perhaps being in contact as a supporter, email me at

    dwellintheheart@yahoo.com

    I will help serious and trustworthy folks who want to be active in assisting Janie in her cause.

    PBS show investigates the drugging of children

    From: Senior Editor
    Ken Dornstein, PBS, FRONTLINE

    http://www.pbs.org/frontline/

    This Week: “The Medicated Child”

    *THIS* Tuesday, Jan. 8, 2008 at 9pm on PBS (check local listings)

    Live Discussion: Chat with producer Marcela Gaviria, Jan. 9, 2008, 11am ET

    This summer, FRONTLINE producer Marcela Gaviria set out to answer a question that has been troubling parents, doctors, and government regulators: Why are millions of American children being prescribed increasingly powerful, behavior-modifying drugs that have not been adequately tested in kids?

    In “The Medicated Child,” airing Tuesday night, Gaviria takes us deep inside the world of child psychiatry where a debate is growing about how early to diagnose mental illness in children, and which drugs are safe for treatment. At the heart of the story is the dramatic rise of a controversial new diagnosis–bipolar disorder–which, until recently was thought only to exist in adults, but now has been found in over one million children, including a growing number of toddlers.

    Watch a preview at

    http://www.pbs.org/wgbh/pages/frontline/medicatedchild/

    Gaviria finds many who challenge the validity of child bipolar disorder, and others who charge it’s being overdiagnosed. But, ultimately, it’s parents who are stuck with the hard choices about whether to treat their children with the potent psychiatric drugs prescribed for the disorder.

    Meet Jacob Solomon, for instance. A preschool teacher urged his parents to medicate him for hyperactivity, but the diagnosis progressed to bipolar disorder and Jacob soon found himself on a cocktail of prescription drugs that came with serious side effects his doctors don’t yet fully understand. “It all started to feel out of control,” Jacob’s father tells FRONTLINE. “Nobody ever said we can work with this through therapy and things like that. Everywhere we looked it was, ‘Take meds, take meds, take meds.'”

    Then there’s four-year-old DJ whose parents reluctantly agreed to treat him with a new “anti-psychotic” drug for his extreme mood swings. “If he didn’t take [the medicine], I don’t know if we could function as a family,” his mother tells FRONTLINE. “It’s almost a do-or-die situation over here.” DJ’s doctor explains: “It’s really to some extent an experiment, trying medications in children of this age. It’s a gamble. And I tell parents there’s no way to know what’s going to work.”

    So who’s monitoring this experiment on our children?

    How do doctors decide when a toddler’s tantrums cross the line into mental illness?

    What are scientists learning about genetics and brain development that might one day remake the entire field of child psychiatry?

    Gaviria talks to a broad range of child psychiatrists and researchers, then heads to Washington where she learns something that’s sure to give any parent pause at the pharmacy: The Food and Drug Administration knows shockingly little about the effects of most prescription drugs on children.

    “Parents need to be aware that all products haven’t been studied in children,” one top doctor at the FDA tells FRONTLINE. “As a matter of fact, I’d say too high a percentage of time we don’t know what we’re doing, and we need to study it in kids and get the dosing right and know whether it works in them.”

    I hope you’ll watch this important and timely program Tuesday night, and then visit online to watch it again, explore the extended interviews with experts, read a parents’ guide on psychiatric medications for children, or get answers to some “frequently asked questions.” And, join the discussion at:

    http://pbs.org/frontline/medicatedchild/

    Mad and Non-Mad Radio: Some Different — Very Different — Radio Shows
    submitted by David W. Oaks — last modified 2007-11-06 10:32

    Here are several Mad radio shows and one Non-Mad radio show you may listen to about changing the mental health system, all hosted by MindFreedom members who are psychiatric survivors! All may be heard on the web.
    Mad and Non-Mad Radio: Some Different — Very Different — Radio Shows

    Oryx and Will at the madness radio controls.

    MINDFREEDOM NEWS HOUR:

    Of course!

    MindFreedom’s own show each Wednesday at 4 pm ET for more info click here.

    That’s one… here are three more!

    NORTHAMPTON, Massachusetts, USA:

    Listen to Madness Radio: Voices and Visions from Outside Mental Health, produced by Freedom Center and the Icarus Project. Madness Radio is broadcast weekly on Pacifica affiliate WXOJ-LP FM Wednesdays at 6 to 7 pm Eastern Standard Time in Northampton Massachusetts.

    Their podcast can be heard at:

    http://feeds.feedburner.com/madnessradio

    Listen live and to archived shows and podcasts at madnessradio.net.

    COLORADO:

    Mary Van Pelt has done a number of radio productions… For info about the link to her web site, click here.

    PORTLAND, Oregon, USA:

    Talking about “being nuts” on Portland, Oregon radio- Mad Liberation by Moonlight

    By Rick Snook and Daniel Flessas

    History:

    It all started when I was in the 5th grade and Dan Flessas was my best friend. Our favorite activity was to get on the radio by making prank calls to talk radio stations, usually with the intent (and some success) of getting some racy language or crude joke past the 3 second bleeper. Time flies and years later Daniel became a host of a regular Friday night program on KBOO- The Outside World. He has been doing the show for at least 23 years.

    In the fall of 2006 I suggested to him that we start having a monthly feature on his show where we would discuss mental health related topics and request callers to join in with their stories of struggle with the system. He said- “great”- so we did it.

    So, on the Friday following the full-moon the lunatics take over KBOO and talk about being nuts. I usually bring some news items to read, sometimes some poetry related to the subject or a personal story. We often have guests. The show is from 1 am to 2 am (approximately- sometimes longer and we rarely start right on time). We are gradually gathering steam; more callers each month. KBOO is streamed on the internet so we can get some calls from far away places.

    We play some music that seems appropriate. We sometimes have live music in the background (folks who stop by the station after their club sets).

    For more information see

    http://www.kboo.fm/

    Or contact me, Rick Snook-

    dwellintheheart@yahoo.com

    NON-MAD Radio

    The following radio show host, who is a psychiatric survivor, prefers that his show not be called “mad” radio… Host Don Weitz is a and legend in Toronto and internationally for his decades of work against psychiatric human rights violations, so his preference is fine with us.

    Says Don, “Antipsychiatry should not be confused or conflated with madness!” Don’s biography describes some of his writing to newspapers as “angry,” so duly noted, Don can be angry, but not mad!

    TORONTO, Ontario, Canada:
    by Don Weitz

    Antpsychiatry Radio is a unique and powerful program on CKLN (88.1FM, http://www.ckln.fm, an independent community radio station in Toronto.

    It airs on the last Friday every month at 6:30-7pm (EST).

    Hosted and produced by antipsychiatry activist and psychiatric survivor Don Weitz, the program features interviews with psychiatric survivors re their personal stories of psychiatric abuses including electroshock, forced drugging and involuntary committal; victories over human rights violations in the psychiatric system; grassroots resistance, and movement news.

    Don can be contacted at:

    dweitz@pathcom.com

    Peer Operated Recovery Treatment and Support (PORTS)

    A Mental Health Recovery Model Developed by Michael Hlebechuk

    PORTS is a mental health self-directed care model that combines mental health brokerage services with a peer counseling/advocacy education program and a couple of evidence based practices that actually work. There are no outcome studies to demonstrate the efficacy of PORTS. It has never been implemented. I drafted it up in response to a question for a job interview. I firmly believe, however, that if implemented this model would help people along the road to recovery in ways we haven’t seen yet through a formal program. The 2 page draft that outlines PORTS is located at:

    http://www.oregon.gov/DHS/mentalhealth/consumers-families/ports.pdf

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    Multiple topics day

    First of all, some mental health consumer oriented blogs. I’m adding them to the links bar as well but am including the descriptions below:

    http://www.furiousseasons.com/
    Furious Seasons is authored by a journalist/patient Philip Dawdy who was diganosed with bipolar disorder and who seeks to hold the mental health industry accountable. The author is opposed to outpatient commitment and forced electroshock treatments.

    http://pistachiopress.blogspot.com/
    A variety of news items and opinions on a web log run by Patricia Lefave of Ontario, Canada “expressing the alternative views of those who are dissatisfied with the current state of the mental health system around the world and current and growing powers of bio-psychiatry and the psychiatric establishment”

    http://bipolarblast.wordpress.com/
    From the blogger: “I was diagnosed with bipolar disorder in 1985 at age 19. I was medicated off and on from 1985 to 1988 and then medicated in 1992 to the present after having the daylights scared out of me by what I now see as ignorant doctors. About three years ago I started questioning the heavy drugging of my symptoms as well as the diagnosis itself. I began the slow and difficult process of withdrawing from my psych meds. I hope to share with the readers of this blog this journey as it continues. This journey includes my ultimate disillusionment of psychiatry and the pharmaceutical industry.”

    http://recoveryfromschizophrenia.org/blog/
    Ron Unger is a full-time therapist in Eugene, Oregon and Coordinator of MindFreedom Lane County. From Ron’s blog description: According to what has been called the medical model, people who have been diagnosed with “schizophrenia” and with “psychosis” in general, have a brain disease or chemical imbalance… While the medical model can easily be criticized for lacking evidence, a perhaps more important criticism of it is that it lacks any model for how people recover! If people have a brain disease today, how could they go on to have highly successful lives later? And why is it that most of those who are doing best have all long ago quit their “medical” treatment, psychiatric drugs? (I’ve talked with Ron and he’s a wonderful resource.)

    http://www.stir-crazy.org/
    “Shaking a stick at the state of mental health,” the stir-crazy blog is based in Minnesota. From the site: “stir-crazy.org is hosted and written by Christin. Additional posts are written by other participants in the Icarus Project – Minneapolis discussion group, but the opinions expressed therein are the respective author’s and not necessarily those of the group or the national Icarus Project. The Icarus Project – Minneapolis is also hosted by stir-crazy.org.”

    This just from Spitzer News, related to disability rights I suppose:

    NASA UNVEILS COSMIC IMAGES BOOK IN BRAILLE FOR BLIND READERS

    At a ceremony held today at the National Federation of the Blind, 
    NASA unveiled a new book that brings majestic images taken by its 
    Great Observatories to the fingertips of the blind. The Great 
    Observatories include NASA‘s Hubble, Chandra and Spitzer space 
    telescopes.

    “Touch the Invisible Sky” is a 60-page book with color images of 
    nebulae, stars, galaxies and some of the telescopes that captured the 
    original pictures. Each image is embossed with lines, bumps and other 
    textures. These raised patterns translate colors, shapes and other 
    intricate details of the cosmic objects, allowing visually impaired 
    people to experience them. Braille and large-print descriptions 
    accompany each of the book’s 28 photographs, making the book’s design 
    accessible to readers of all visual abilities.

    The book contains spectacular images from the Great Observatories and 
    powerful ground-based telescopes. The celestial objects are presented 
    as they appear through visible-light telescopes and different 
    spectral regions invisible to the naked eye, from radio to infrared, 
    visible, ultraviolet and X-ray light.

    The book introduces the concept of light and the spectrum and 
    explains how the different observatories complement each others’ 
    findings. Readers take a cosmic journey beginning with images of the 
    sun, and travel out into the galaxy to visit relics of exploding and 
    dying stars, as well as the Whirlpool galaxy and colliding Antennae 
    galaxies.

    “Touch the Invisible Sky” was written by astronomy educator and 
    accessibility specialist Noreen Grice of You Can Do Astronomy LLC and 
    the Museum of Science, Boston, with authors Simon Steel, an 
    astronomer with the Harvard-Smithsonian Center for Astrophysics in 
    Cambridge, Mass., and Doris Daou, an astronomer at NASA Headquarters, 
    Washington
    .

    “About 10 million visually impaired people live in the United 
    States
    ,” Grice said. “I hope this book will be a unique resource for 
    people who are sighted or blind to better understand the part of the 
    universe that is invisible to all of us.”

    The book will be available to the public through a wide variety of 
    sources, including the National Federation of the Blind, Library of 
    Congress
    repositories, schools for the blind, libraries, museums, 
    science centers and Ozone Publishing.

    “We wanted to show that the beauty and complexity of the universe 
    goes far beyond what we can see with our eyes!” Daou said.

    “The study of the universe is a detective story, a cosmic ‘CSI,’ 
    where clues to the inner workings of the universe are revealed by the 
    amazing technology of modern telescopes,” Steel said. “This book 
    invites everyone to join in the quest to unlock the secrets of the 
    cosmos.”

    “One of the greatest challenges faced by blind students who are 
    interested in scientific study is that certain kinds of information 
    are not available to them in a non-visual form,” said Marc Maurer, 
    president of the National Federation of the Blind. “Books like this 
    one are an invaluable resource because they allow the blind access to 
    information that is normally presented through visual observation and 
    media. Given access to this information, blind students can study and 
    compete in scientific fields as well as their sighted peers.”

    The prototype for this book was funded by an education grant from the 
    Chandra mission, and production was a collaborative effort by the 
    NASA space science missions, which provide the images, and other 
    agency sources.

    NASA’s Jet Propulsion Laboratory, Pasadena, Calif., manages the 
    Spitzer Space Telescope mission for NASA’s Science Mission 
    Directorate, Washington. Science operations are conducted at the 
    Spitzer Science Center at the California Institute of Technology
    also in Pasadena. Caltech manages JPL for NASA.

    I’m also adding the Spitzer site to my link list.

    The Icarus Project Harm Reduction Guide for Comng Off of Psychiatric Drugs

    The Icarus Project and Freedom Center’s 40-page guide gathers the best information we’ve come across and the most valuable lessons we’ve learned about reducing and coming off psychiatric medication. Includes info on mood stabilizers, anti-psychotics, anti-depressants, anti-anxiety drugs, risks, benefits, wellness tools, withdrawal, information for people staying on their medications, detailed Resource section, and much more. Written by Will Hall, with a 14-member health professional Advisory Board providing research assistance and 24 other collaborators involved in developing and editing. The guide has photographs and art throughout, and a beautiful original cover painting by Ashley McNamara.

    Go here:

    http://theicarusproject.net/alternative-treatments/harm-reduction-guide-to-coming-off-psychiatric-drugs

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